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Event
ELSI Friday Forum |Patients as Partners in Sickle Cell Disease Research in Africa: Ethos, Challenges and Lessons Learned
Join us on Friday, May 10, 2024, for the next ELSI Friday Forum: Patients as Partners in Sickle Cell Disease Research in Africa: Ethos, Challenges and Lessons Learned, with speakers: Ms. Arafa… -
Event
Population Descriptors for Legacy Genomic Data: Challenges and Future Directions
Several National Institutes of Health (NIH) Institutes, Offices, and Centers* are partnering to host a two-day virtual workshop on May 28-29, 2024, to further explore the recommendations from the… -
Event
Genetic Ancestry and Perceptions of Race: Impacts in Social and Medical Contexts
Genetic Ancestry and Perceptions of Race: Impacts in Social and Medical Contexts” that will be held at the University of Pennsylvania on Thurs. May 9. The event is co-sponsored by Penn’s Department… -
In the Media
NEWS 23 February 2024 ‘All of Us’ genetics chart stirs unease over controversial depiction of race
Nature |Debate over figure connecting genes, race and ethnicity reignites concerns among geneticists about how to represent human diversity.- All of Us Research Program
- race and genetics
- Ethnicity
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In the Media
‘All of Us’ reports half of the genomes it has sequenced are from non-Europeans
STAT News |Six years ago, the National Institutes of Health placed its biggest ever bet on precision medicine, launching a study to enroll over 1 million participants in an ambitious data-gathering…- All of Us Research Program
- Pangenome
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In the Media
23andMe Breach Targeted Jewish and Chinese Customers, Lawsuit Says
The New York Times |The class-action suit said the genetic testing company failed to notify customers whose personal information was compiled into “curated” lists that were sold on the dark web.- 23andMe
- genetic data
- Biobanking and genomic databases
- breaches of confidentiality
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Event
ASBH 26th Annual Conference
ASBH 26th Annual Conference What Does It Mean to be Human? As we watch the meteoric rise of artificial intelligence technology, we are confronted with increasingly complex moral… -
Event
ASHG Annual Meeting 2024
We are excited to bring the ASHG 2024 Annual Meeting to Denver, Colorado, from November 5-9. Over the course of 5 days, the meeting will cover a broad spectrum of topics including new technologies,… -
In the Media
U.K. approves world’s first CRISPR-based medicine, giving green light to therapy for sickle cell, thalassemia
Stat News |Regulators in the U.K. on Thursday approved a CRISPR-based medicine to treat both sickle cell disease and beta thalassemia, making it the world’s first therapy built on the revolutionary gene-editing…- CRISPR
- CRISPR gene therapy
- Sickle Cell
- Thalassemia
- gene therapy
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In the Media
Panel Says That Innovative Sickle Cell Cure Is Safe Enough for Patients
The New York Times |The decision by an advisory committee may lead to Food and Drug Administration approval of the first treatment for humans that uses the CRISPR gene-editing system- CRISPR
- Sickle Cell
- gene therapy