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News
NIH Requests Information on Developing Consent Language for Future Use of Data and Biospecimens
On July 1, 2021 the National Institutes of Health (NIH) announced a Request for Information (RFI) on the utility and useability of Consent for Data and Biospecimen Sharing for Future…- Consent
- data and biospecimens consent
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News
Genetics and Responsibility: More Complicated Than We’d Thought
Watch the recordings of the symposium here By Erik Parens, PhD and Paul S. Appelbaum, MD In 1991, sociologist Abby Lippman proposed the geneticization thesis, i.e., that “genetic science [would]…- genetics and responsibility
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News
Melanie Myers: A Call for Research on Genetic Counseling Processes and Practices
Dr. Myers discusses this exciting new RFA – and how to use ELSIhub to find and follow up on funding opportunities Melanie Myers, PhD, MS spoke with CERA staff about the new National Human…- Genetic Counseling
- genetic counseling research
- genetic counseling training
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News
Why it is Important to Call Out Racist Language Amongst Our Professional Peers
Recently, on a panel at a conference of a medical professional society, the president of the society used a racist term that is an ethnic slur used to refer to Asians. The speaker did not publicly…- racism
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News
TraineeHub Resources
This digital collection of ELSI-related resources is intended to provide useful information for ELSI trainees and early career scholars. If you would like submit a resource please email…- TraineeHub Resources
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News
A Bigger View: Ingrid Holm on Sharing Research Tools
CERA staff spoke with Ingrid A. Holm, MD, MPH, Professor of Pediatrics, Harvard Medical School, in April about two research instruments she deposited into the Research Tools Database on…- research tools
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News
From Trainees to Scholars: Three ELSI Career Paths
ELSI scholarship is constantly evolving as new technologies raise new ethical challenges and questions. For younger scholars in the field, this presents ample opportunity to explore original topics…- ELSI research
- ELSI training program
- Careers in ELSI
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News
ELSIhub Collections | Race, Genetics, and Genetics Education
Click here for all ELSIhub Collections Collection Editors Brian M. Donovan, PhD, Research Scientist, BSCS Science Learning Daphne O. Martschenko, PhD, Postdoctoral Research Fellow,…- race and genetics
- genetic education
- Genetics
- Racial essentialism
- genomics literacy
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News
ELSIhub Collections | Ethical, Legal, and Social Implications (ELSI) at the Intersection of Genomics and Infectious Disease
Click here for all ELSIhub Collections Collection Editors Debra JH Mathews, PhD, MA, Center for Bridging Infectious Disease, Genomics, and Society (BRIDGES), Assistant Director…- genomics and infectious disease
- Covid-19
- ethical conduct of phylogenetic studies
- host genome testing
- data justice
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News
Code of Conduct
Code of Conduct for ELSIhub Events The ELSI community of scholars has attempted to nurture an academic culture that embraces the importance of diversity, supports the mentorship of young scholars,…- Code of Conduct