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Grant Abstract
University of Michigan Training Program in ELSI Research
Genetics and genomics research are rapidly generating scientific discoveries, technological advances, and clinical applications, each with important implications for medicine and public health. In…- Michigan
- Research
- Training Programs
- Universities
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Grant Abstract
MBARARA UNIVERSITY RESEARCH ETHICS EDUCATION PROGRAM (MUREEP)
The volume of international research in sub Saharan Africa is increasing largely because of the continents unique high burden of diseases such as malaria, HIV and more recently non-communicable…- Address
- Administrator
- Africa South of the Sahara
- African
- Award
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Grant Abstract
Understanding Implications of Genetic Attributions for Addiction
Addictive disorders are increasingly conceptualized as biomedical diseases with genetic roots. While conventional wisdom has suggested that attributing addictions to genetics should have many…- Addiction
- Adopted
- Adult
- Affect
- alcohol use disorder
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Grant Abstract
The Ethics of Inclusion: Conceptualizing Diversity in Genomics Research
In the emerging era of precision medicine, there have been increasing calls for diversity and the inclusion of historically under-represented racial and ethnic populations in biobanking and…- Attention
- Beneficence
- benefit sharing
- biobank
- Clinical Medicine
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Grant Abstract
Health Care Provider Responses to Receiving Unsolicited Genomic Results
Background: There is great interest in the implementation of genomic medicine, i.e., using genomic information to inform patient care. As a result, patients with medically actionable (preventable and…- barrier to care
- base
- Behavior
- biobank
- cancer therapy
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Grant Abstract
Sequencing and Genotyping in Diverse Populations: Who Wants What Back (and When)?
The North Coast Conference on Precision Medicine is a national annual mid-sized conference series held in Cleveland, Ohio. The conference series aims to serve as a venue for the continuing education…- Academic Medical Centers
- Acceleration
- African American
- Area
- Back
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Grant Abstract
Genetics and genomic research in Uganda: Towards context specific ethics guidelines
The overall goal of this proposed project is to systematically develop culturally appropriate model ethics guidelines for conducting genetics and genomics research (GGR) in Uganda. This goal will be…- Africa
- Africa South of the Sahara
- authority
- Awareness
- Bioethics
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Grant Abstract
Programs for the Training and Advancement of the Next GENeration of Native Researchers in Genetics, Ethics and Society
The lack of American Indian and Alaska Native professionals in genomic sciences today highlights the tremendous need for effective training and research programs to prepare the next generation of…- academic program
- Achievement
- Address
- Affect
- Alaska Native
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Grant Abstract
Intergenerational Monitoring in Clinical Trials of Germline Gene Editing: Ethical, Legal, and Social Issues
Project Summary The breakneck pace of development towards potential uses of germline gene editing (GGE) in medicine raises some very crucial ethical questions. Though much research still needs to be…- biobank
- Bioethical Issues
- Bioethics
- Bioethics Consultants
- Cell Therapy
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Grant Abstract
Unresolved Issues in Newborn Screening: Quantifying the Harms of a False Positive Result
While newborn screening (NBS) programs have saved the lives of thousands of children with inherited disorders, the future success of this vital public health program depends on the ability to…- adverse outcome
- Behavioral
- Bioethics
- Biometry
- Birth Order