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Grant Abstract
Genome Technology & Reproduction - values & public policy
This project represents a unique effort to give segments of the public an advance look at the emerging genetics technology, to learn from lay and professional communities how they feel about that… -
Grant Abstract
Families and Carrier Testing for Hemophilia A
The purpose of this project is to enhance understanding of how individuals respond to carrier detection in genetic diseases that have an X-linked mode of inheritance. The project will study how… -
Grant Abstract
The First International Conference on DNA Sampling & Human Genetic Research: Ethical, Legal and Policy Aspects
The conference, which will be held in Montreal on September 5-8, 1996, is designed as the first international, comparative forum for the examination of the broad issues of 'controlling'… -
Grant Abstract
Tuskegee Genome Conference
This conference, which will take place over a three-day period at the Kellogg Executive Conference Center at Tuskegee University in September 1996, will provide a forum for increasing awareness of… -
Grant Abstract
The Human Genome Project: Reaching the Minority Communities of Maryland
This two-day conference will provide information about the Human Genome Project (HGP), and specifically the ethical, legal, and social implications (ELSI) of the HGP, to members of minority… -
Grant Abstract
Ensuring Confidentiality in the Publication of Pedigrees
This project will address problems in maintaining privacy and confidentiality in the publication of pedigrees in the biomedical literature. The study will: (1) conduct a survey of scientific journal… -
Grant Abstract
Dissemination of a BRCA1 Predisposition Testing Program (II)
This is a multi-site randomized study comparing standard genetic counseling (GC) to an enhanced consent-based (EC) model. The investigators will compare the effects of the two interventions on… -
Grant Abstract
Distance-learning for IRBs on Ethical Issues in Genetics
This is an innovative proposal to use the Internet to connect institutional review board (IRB) administrators from five institutions for distant learning on ethical issues in genetics. In addition to… -
Grant Abstract
Ethical Issues in International Health Research
This is a project of the Harvard School of Public Health in collaboration with Tufts University Medical School; Instituto Nacional de Salud Publica, Cuernavaca, Mexico; The University of Natal School… -
Grant Abstract
Prenatal Diagnosis and the Selection of Children
Given the current and anticipated capabilities to perform prenatal diagnosis, the medical profession, and society more broadly, must decide how these technologies should be used. Specifically, what…