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Additional Resource
Consumer Protections for Genomics & Precision Health Information Sheet for Alaska
This educational resource offers a summary of some United States (federal) laws and some specific state laws that offer a variety of legal protections related to genetic/omic and mobile/digital…- Jennifer K. Wagner
- NHGRI
- GINA
- HIPAA
- genetic privacy
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Additional Resource
Consumer Protections for Genomics & Precision Health Information Sheet for Arizona
This educational resource offers a summary of some United States (federal) laws and some specific state laws that offer a variety of legal protections related to genetic/omic and mobile/digital…- Jennifer K. Wagner
- NHGRI
- GINA
- HIPAA
- genetic privacy
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In the Media
Family of Henrietta Lacks Settles With Biotech Company That Used Her Cells
The New York Times |Ms. Lacks’s family had accused Thermo Fisher Scientific of profiting from her cells, which have contributed to revolutionary advances in medicine, without seeking their permission.- HeLa
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Funding Opportunity
Investigator-Initiated Research in Genomics and Health Equity (R21 Clinical Trial Optional)
- Health Equity
- Genomics research
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Funding Opportunity
Investigator-Initiated Research in Genomics and Health Equity (R01 Clinical Trial Optional)
- Health Equity
- Genomics research
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In the Media
The quest for the era of personalised medicine
BBC |The Human Genome Project was supposed to lead to personalised medicine tailored to our DNA. It's finally happening, but it is proving more difficult than anyone could have imagined.- personalized medicine
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In the Media
The search for the world's 'missing' genomes
BBC |Enormous strides have been made to unravel the secrets of the human genome, so why are we missing the genetic information of most of the planet?- Inequality
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In the Media
Forget designer babies. Here’s how CRISPR is really changing lives
MIT Technology Review |The gene-editing tool is being tested in people, and the first treatment could be approved this year.- Gene Editing
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In the Media
Untangling Rosalind Franklin’s Role in DNA Discovery, 70 Years On
The New York Times |Historians have long debated the role that Dr. Franklin played in identifying the double helix. A new opinion essay argues that she was an “equal contributor.”- double helix
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Additional Resource
Qualitative Data Sharing (QDS) Toolkit
The QDS project team at Washington University School of Medicine in St. Louis has developed the QDS Toolkit to support researchers in planning for and sharing qualitative data in an ethical manner.…- qualitative data
- data sharing
- 2023 NIH Data Management and Sharing Policy