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Video
ELSIcon2022 Paper: Sociodemographic diversity in clinical genomics research
ELSIcon2022 • Paper • May 31, 2022 Meghan Halley, Holly Tabor, Jennifer Young Background: Barriers to clinical genomics research participation are particularly critical for medically…- Live
- Paper
- Motivation to participate in research
- Patient-provider communication
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Video
ELSIcon2022 Paper: The Biologization of Morality: Criminal Justice as a Matter of Public Health
ELSIcon2022 • Paper • May 31, 2022 Zachary Ascherl A growing wealth of literature explains criminal behavior in terms of its environmental, neurological, and genetic causes. Legal practitioners…- Live
- Paper
- Emerging technologies - public opinion and policy
- Law, regulation, and governance
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Video
ELSIcon2022 Paper: When State Laws Conflict: Choice of Law Challenges in Multi-Site Research
ELSIcon2022 • Paper • May 31, 2022 Laura Beskow, Leslie Wolf Our previous research demonstrated that precision medicine research implicates numerous state laws, including human subjects…- Live
- Paper
- Laws and research sites
- precision medicine
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ELSIcon2022 Paper: Genetic testing for hereditary cancer risk in India: A Case Study
ELSIcon2022 • Paper • May 31, 2022 Pooja Chitre, Janis Geary, Robert Cook Deegan India has a distinct history of dynamic migration, cultural and ethnic diversity, and widespread endogamy and…- Live
- Paper
- Data and data stewardship
- Genetic testing and screening
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ELSIcon2022 Paper: Physician and patient perspectives on the role of the microbiome in the prevention and treatment of colorectal cancer: the ethics of uncertainty in emerging science
ELSIcon2022 • Paper • May 31, 2022 Juli Bollinger, Sara Glass, Sheethal Jose, Cynthia L. Sears, Gail Geller Background: Research has found unique populations of bacteria in the gut microbiota…- Live
- Paper
- Emerging technologies - public opinion and policy
- Patient-provider communication
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Video
ELIScon2022 Panel: Polygenic Embryo Screening: Ethical Considerations and Stakeholder Perspectives
ELSIcon2022 • Panel Session 4 • May 31, 2022 Gabriel Lázaro-Muñoz, Stacey Pereira, Todd Lencz, Laura Hercher This panel will examine ethical, scientific, clinical, and social considerations related…- Live
- Panel
- Screening for polygenic conditions and risk scores
- reproductive genetics
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ELSIcon2022 Paper: Precision medicine for whom? Upstream and downstream exclusion
ELSIcon2022 • Paper • May 31, 2022 Ilaria Galasso This paper scrutinizes the precision medicine (PM) approach in terms of benefits distribution: it examines the expected outputs of PM research…- Live
- Paper
- Recruiting diverse participants to precision medicine research
- genomics research
- Biobanks
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Video
ELSIcon2022: Flash Session 1
ELSIcon2022 • Flash Session 1 • May 31, 2022 Includes discussion material from Julie Beans, Cheng Chen, Stella Murphy, Nina Vo, Breana Rinker, Bridget Easler, and Sheethal Jose.- Live
- Flash
- Race, disability, and gender studies
- precision medicine
- reproductive genetics
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Video
ELSIcon2022: Paper Session 1
ELSIcon2022 • Paper Session 1 • May 31, 2022 Includes material from Sara H Katsanis, Sarah Roth, Rebecca Mueller, Shelly Simana, and Diana Madden.- Live
- Paper
- Genetic Counseling
- identity
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ELSIcon2022: Paper Session 2
ELSIcon2022 • Paper Session 2 • May 31, 2022 Includes discussion material from Hadley Stevens Smith, Claudia Azuelos, Kate Saylor, and Joel Pacyna.- Live
- Paper
- Genetic testing and screening