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ELSIcon2022 Paper: Exploring Disparities and Equity Across the Newborn Screening System
ELSIcon2022 • Paper • June 1, 2022 Aaron Goldenberg, Beth Tarini, Natasha Bonhomme, Amy Gaviglio As with much of society, public health and medicine have been called to examine and act on…- Live
- Paper
- Population screening and public health genomics
- Genetic testing and screening
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ELSIcon2022 Paper: Interrogating the Value of Return: Stakeholders’ Perspectives on Return of Results in Biomedical Research
ELSIcon2022 • Paper • June 1, 2022 Caitlin McMahon, Nicole Foti, Mel Jeske, William Britton, Janet Shim, and Sandra Soo-Jin Lee on behalf of Ethics of Inclusion Study Team Over the last decade…- Live
- Paper
- Return of Results
- precision medicine
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ELSIcon2022 Paper: Mandating Diversity in the Context of Inequity: Re-examining the Research-Care Divide in Precision Medicine Research
ELSIcon2022 • Paper • June 1, 2022 Nicole Foti, Emily Vasquez, Caitlin McMahon, Sandra Soo-Jin Lee, and Janet Shim on behalf of Ethics of Inclusion Study Team There is a diversity deficit in…- Live
- Paper
- Recruiting diverse participants to precision medicine research
- genomics research
- Biobanks
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ELSIcon2022 Paper: Mapping Diversity and Equity in Precision Medicine Research: Towards an Ethics of Inclusion
ELSIcon2022 • Paper • June 1, 2022 Sandra Soo-Jin Lee and Janet Shim on behalf of Ethics of Inclusion Study Team This paper draws on our study that takes a research ‘lifecourse’ perspective to…- Live
- Paper
- Recruiting diverse participants to precision medicine research
- genomics research
- Biobanks
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ELSIcon2022 Paper: Navigating community engagement in clinical trial research
ELSIcon2022 • Paper • June 1, 2022 Mikaella Caruncho, Jennifer James, Galen Joseph In recent years, community engagement approaches to genomic research have grown in popularity, motivated by…- Live
- Paper
- Recruiting diverse participants to precision medicine research
- genomics research
- Biobanks
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ELSIcon2022: Paper Session 5
ELSIcon2022 • Paper Session 5 • June 1, 2022 Includes discussion material from Aaron Goldenberg, Emily Mrig, and Susan Trinidad.- Live
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- Genetic testing and screening
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ELSIcon2022: Paper Session 6
ELSIcon2022 • Paper Session 6 • June 1, 2022 Includes discussion material from Caitlin McMahon, Nicole Foti, Janet Shim, and Mikaella Caruncho.- Live
- Paper
- precision medicine
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ELSIcon2022 Panel: Permeable Membranes: How the blurring of boundaries and merging of silos should reshape ELSI research
ELSIcon2022 • Panel Session 7 • June 1, 2022 Brian Hutler, Debra Matthews, Rebecca Wilbanks Advancing understanding of the mechanisms of disease point to a growing number of examples of '…- Live
- Panel
- Reflections on the ELSI field
- precision medicine
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ELSIcon2022 Panel: What Can Intersectionality Bring to ELSI?: Transforming Theory into Practice
ELSIcon2022 • Panel Session 8 • June 1, 2022 Daphne Martschenko, Lucas Matthews, Maya Sabatello, Krystal Tsosie In theory, the study of Ethical, Legal, and Social Implications (ELSI) of…- Live
- Panel
- Reflections on the ELSI field
- equity and justice in genetics
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ELSIcon2022 Paper: When Covering and Discovering Are at Odds: How the Logic of Health Insurance Undercuts the Promise of Precision Medicine for People with Hereditary Cancer Risks
ELSIcon2022 • Paper • June 1, 2022 Mark Schlesinger, Rachel Grob, Emily Mrig The past two decades have seen significant advancement in precision medicine approaches to preventing and treating…- Live
- Paper
- Access to genetic screening and therapies