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News
Introducing the Qualitative Data Sharing (QDS) Toolkit
We spoke with James M. DuBois, DSc, PhD, principal investigator of the QDS Project, about the new Qualitative Data Sharing (QDS) Toolkit. The QDS project team created the toolkit to support… -
News
ELSI in Review • July 2023
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our July 2023 set explores digital interventions for genomics… -
News
Announcing the 5th ELSI Congress Special Issue of the American Journal of Bioethics
We are pleased to announce the publication of a special issue of the American Journal of Bioethics. The 5th ELSI Congress issue includes five target articles, thirty-one open peer… -
In the Media
The quest for the era of personalised medicine
BBC |The Human Genome Project was supposed to lead to personalised medicine tailored to our DNA. It's finally happening, but it is proving more difficult than anyone could have imagined.- personalized medicine
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In the Media
The search for the world's 'missing' genomes
BBC |Enormous strides have been made to unravel the secrets of the human genome, so why are we missing the genetic information of most of the planet?- Inequality
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In the Media
Forget designer babies. Here’s how CRISPR is really changing lives
MIT Technology Review |The gene-editing tool is being tested in people, and the first treatment could be approved this year.- Gene Editing
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In the Media
Untangling Rosalind Franklin’s Role in DNA Discovery, 70 Years On
The New York Times |Historians have long debated the role that Dr. Franklin played in identifying the double helix. A new opinion essay argues that she was an “equal contributor.”- double helix
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News
Public Health Genomics Seeks Perspective Papers for Special Issue
Call for Perspective Papers Public Health Genomics is the first periodical to focus on rigorous research and evidence-based practice at the intersection of genomic discovery and public health.… -
News
ELSIconversations with the Ancestry and Diversity Working Group (ADWG) of ClinGen
The initial ADWG ELSIconversations were comprised of a series of three events on population descriptors (e.g., race, ethnicity, and/or ancestry) on clinical genetics laboratory requisition forms.… -
News
ELSI in Review • June 2023
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our June 2023 set explores transparency in secondary use…