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In the Media
A Racist Researcher, Exposed by a Mass Shooting
The New York Times |Monika Pronczuk and Koba Ryckewaert- racism in medicine. medical research, and publishing
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News
Using a Family Advisory Council to Understand the Informational Needs of Prospective Gene Therapy Trial Participants: An Interview with the Co-PIs of the SCDGENE CERA Working Group
Sickle cell disease (SCD), characterized by severe pain crisis and progressive organ damage as well as early death, is one of the most common inherited blood disorders in the world. However, since 90…- sickle cell disease
- gene therapy
- Sickle Cell
- gene therapies
- community based participatory research
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News
ELSI in Review • June 2022
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our June 2022 set explores distributed ledger technology in… -
In the Media
How Much Do Your Genes Shape Your Politics?
The New York Times |Thomas B. Edsall- Sociogenomics
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In the Media
The Pandora’s Box of Embryo Testing Is Officially Open
Bloomberg |Carey Goldberg- Preimplantation Embryos
- preimplantation genetic testing
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News
CERA Statement Against the Weaponization of Genetic Research
The shooting in Buffalo that resulted in the deaths of ten Black Americans is one of many in a series of tragedies that have resulted from systemic racism. We condemn white supremacy and the misuse…- racism
- Behavioral Genetics
- Eugenics
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In the Media
Buffalo shooting ignites a debate over the role of genetics researchers in white supremacist ideology
STAT |Megan Molteni- race and genetics
- genetics and white supremecy
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In the Media
Targeting the Uneven Burden of Kidney Disease on Black Americans
The New York Times |Gina Kolata- race and genetics
- Genetic Disorders
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In the Media
Why Biology Is Not Destiny
The New York Review of Books |M.W. Feldman and Jessica Riskin- Polygenic risk scores
- genetic essentialism
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News
All of Us Research Program Seeks Input on Environmental Health Data
The National Institutes of Health’s All of Us Research Program has issued a Request for Information (RFI) to gather public suggestions on integrating environmental health data…- All of Us Research Program
- Environmental Health
- request for information