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News
What is the Genomics and Society Working Group at NHGRI?
The Genomics and Society Working Group (GSWG) is the oldest of four working groups established by National Advisory Council for Human Genome Research (NACHGR) (also known as “the council”) to provide… -
News
ELSI in Review • May 2024
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our May 2024 set explores parental perspectives on early life… -
Publication
Additional findings from the 100,000 Genomes Project: A qualitative study of recipient perspectives
Genetics in Medicine -
Publication
Experiences of pediatric cancer patients (age 12-18 years) with extensive germline sequencing for cancer predisposition: A qualitative study
European Journal of Human Genetics -
Publication
Queering the genome: Ethical challenges of epigenome editing in same-sex reproduction
Journal of Medical Ethics -
Publication
A systematic review of the assessment of the clinical utility of genomic sequencing: Implications of the lack of standard definitions and measures of clinical utility
European Journal of Medical Genetics