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Workshop Proceedings, An Examination of Emerging Bioethical Issues in Biomedical Research, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2020)
This National Academies Press publication summarizes the proceedings of a workshop that explored bioethical issues related to the development and use of digital technologies, artificial intelligence…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Ethics Committee Opinion, Interests, Obligations, and Rights in Gamete and Embryo Donation, American Society for Reproductive Medicine (ASRM)
This ASRM Ethics Committee Report published in 2019 highlights the need for shared information in the consent process, addresses preferences expressed by donors over who should receive their gametes…- ethics committee opinion
- embryo donation
- gamete donation
- American Society for Reproductive Medicine
- ASRM
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Implementing GeNomics in Practice (IGNITE I & IGNITE II)
The Implementing GeNomics In PracTicE (IGNITE) Pragmatic Clinical Trials Network, is a network of research sites that support the implementation of genomics in healthcare by conducting pragmatic…- electronic medical record
- clinical decision support
- genomic information
- Patient Care
- sustainability
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Accessibility, Inclusion, and Action in Medical Education
This report by the Association of American Medical Colleges (AAMC) and the University of California, San Francisco, School of Medicine (UCSF) shares the day-to-day experiences of learners and…- accessibility
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Position Statement, Ethics in Embryo Research, American Society for Reproductive Medicine (ASRM)
This position statement, issued by the ASRM Ethics in Embryo Research Task Force and the ASRM Ethics Committee and published in 2019, addresses ethical considerations in embryo research.- position statement
- Ethics
- embryo research
- American Society for Reproductive Medicine
- ASRM
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Qualitative Data Sharing (QDS) Toolkit
The QDS project team at Washington University School of Medicine in St. Louis has developed the QDS Toolkit to support researchers in planning for and sharing qualitative data in an ethical manner.…- qualitative data
- data sharing
- 2023 NIH Data Management and Sharing Policy
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Electronic Medical Records and Genomics (eMERGE) Network
The Electronic Medical Records and Genomics (eMERGE) Network, organized and funded by the National Human Genome Research Institute (NHGRI), combines DNA biorepositories with electronic medical record…- EMR systems
- electronic medical record
- DNA biorepositories
- Genomic medicine
- Robb Rowley
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Consensus Study Report, Stem Cells and the Future of Regenerative Medicine, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2002)
This National Academies Press publication documents the evidence-based findings, conclusions, and recommendations of a committee of experts on the biological, ethical, and funding questions raised by…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Additional Resource
Use of Race, Ethnicity, and Ancestry as Population Descriptors in Genomics Research: Audio Recommendations
The National Academies of Sciences, Engineering, and Medicine produced this audio file summarizing recommendations for the use of population descriptors in human genetics and genomics research.- NASEM
- population descriptors
- genetic ancestry
- genomics research
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Additional Resource
Policy Statements, American College of Medical Genetics and Genomics
The Advocacy Committee of the American College of Medical Genetics and Genomics (ACMG), chaired by Sheila Dobin, releases policy statements to promote the responsible application of genomics in…- genetic information
- points-to-consider
- policy statement
- consideration
- Recommendation