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Consumer Protections for Genomics & Precision Health Information Sheet for North Carolina
This educational resource offers a summary of some United States (federal) laws and some specific state laws that offer a variety of legal protections related to genetic/omic and mobile/digital…- Jennifer K. Wagner
- NHGRI
- GINA
- HIPAA
- genetic privacy
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Additional Resource
Workshop Proceedings, The Learning Healthcare System, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2007)
This National Academies Press publication summarizes the proceedings of a workshop that explored issues associated with the creation of a sustainable learning health care system. The workshop was…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Additional Resource
Consensus Study Report, The California Institute of Regenerative Medicine: Science, Governance, and the Pursuit of Cures, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2013)
This National Academies Press publication outlines the findings, conclusions, and recommendations of an evaluation conducted by the Committee on a Review of the California Institute for Regenerative…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Additional Resource
Newborn Sequencing in Genomic Medicine and Public Health (NSIGHT)
The Newborn Sequencing in Genomic Medicine and Public Health (NSIGHT) program funded research that explored the implications, challenges and opportunities associated with the possible use of genomic…- newborn
- Newborn screening
- disorder
- DNA-based analysis
- Genomic Sequencing
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Additional Resource
Consumer Protections for Genomics & Precision Health Information Sheet for US Virgin Islands
This educational resource offers a summary of some United States (federal) laws and some specific state laws that offer a variety of legal protections related to genetic/omic and mobile/digital…- Jennifer K. Wagner
- NHGRI
- GINA
- HIPAA
- genetic privacy
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Additional Resource
Consumer Protections for Genomics & Precision Health Information Sheet for Northern Mariana Islands
This educational resource offers a summary of some United States (federal) laws and some specific state laws that offer a variety of legal protections related to genetic/omic and mobile/digital…- Jennifer K. Wagner
- NHGRI
- GINA
- HIPAA
- genetic privacy
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Additional Resource
Consumer Protections for Genomics & Precision Health Information Sheet for District of Columbia
This educational resource offers a summary of some United States (federal) laws and some specific state laws that offer a variety of legal protections related to genetic/omic and mobile/digital…- Jennifer K. Wagner
- NHGRI
- GINA
- HIPAA
- genetic privacy
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Additional Resource
Connecticut 2017 State Bills (Connecticut 2017 SB 968)
Creates a health data collaborative working group to examine and make recommendations regarding (1) precision medicine and personalized health; (2) economic growth initiatives for businesses working…- state bill
- bill
- Connecticut
- precision medicine
- Privacy
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Additional Resource
Workshop Proceedings, Exploring Novel Clinical Trial Designs for Gene-Based Therapies, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2019)
This National Academies Press publication summarizes the proceedings of workshop on ethical issues in clinical trials for gene therapies. This workshop was convened by the Forum on Regenerative…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Additional Resource
ELSI Genomics Research, Center for Medical Ethics and Health Policy, Baylor College of Medicine
The Center for Medical Ethics and Health Policy at Baylor College of Medicine, headed by Director, Amy Lynn McGuire, J.D., Ph.D., hosts an ELSI Genomics Research program that explores ELSI issues in…- Baylor College
- medical ethics
- Health Policy
- Amy Lynn McGuire
- Biomedical Research