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Grant Abstract
Genetic Research and the Navajo Nation: Context of and Attitudes to the Moratorium
The Navajo Nation placed a moratorium on genetic research studies in 2002, yet the tribe has high rates of genetic diseases and disorders. Historical distrust, fears of exploitation, and limited…- Attitude
- biomedical scientist
- Communities
- Community Consents
- Disease
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Grant Abstract
Interdisciplinary Center on Epigenetics Science and Society
One of the intended goals of the ELSI CEER program is to provide guidance on policy issues that arise from novel genetic and genomic science and applications. This focus, however, misses epigenetic…- base
- Behavior
- Cancer Diagnostics
- cancer therapy
- Cells
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Grant Abstract
Social Networking and Personal Genomics: Emerging Issues for Health Research
The convergence of rapid development of increasingly efficient high throughput genetic sequencing technologies and ubiquitous internet use by the public has laid the foundation for the emergence of…- Advocacy
- advocacy organizations
- Attitude
- base
- Bioethics
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Grant Abstract
Data Release Policies for Genomics: Legal and Ethical Issues
A significant number of NIH-funded projects are under the jurisdiction of an explicit data release policy. Such projects include: any project with direct costs of more than $500,00 per year, any…- Communities
- confidentiality
- Confusion
- Consent
- Data
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Grant Abstract
Center for ELSI Research on Psychiatric Neurologic and Behavioral Genetics
Research on the genetics of Psychiatric, Neurologic, and Behavioral (PNB) phenotypes reveals a panorama of complexity that creates several challenges: 1) the data are difficult for clinicians to…- Affect
- Area
- base
- Behavior Disorders
- Behavioral
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Grant Abstract
Assessing the Use and Understanding of Certificates of Confidentiality
Researchers and institutions are ethically and legally obligated to safeguard research participants' privacy and the confidentiality of their data. Indeed, the success of the research enterprise…- Certificate of Confidentiality
- confidentiality
- Counseling
- court
- Data
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Grant Abstract
Response to Testing Among Individual Consumers of DTC Personal Genomics Services
Results from several genome-wide association (GWA) studies have recently emerged showcasing the discovery of specific genetic variations found to be associated with several common, complex diseases.…- Anxiety
- Attitude
- base
- Behavior
- behavior change
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Grant Abstract
Conceptions of Race and Ethnicity Used in Gene-Environment Interaction Studies
This qualitative, ethnographic project addresses a "Grand Challenge" for the future of genomic research and a NHGRI ELSI Research Program priority area: the analysis of the impact of…- Applications Grants
- Area
- Area Analyses
- base
- Behavioral Genetics
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Grant Abstract
Human Geneticists' Practices Preferences and Beliefs about Biobanks and Large Cohort Studies
Biobanks that collect and store participants' clinical and genetic information have become important tools in genomic research, disseminating data to a large number of investigators conducting…- American
- Area
- Attitude
- Authorization documentation
- base
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Grant Abstract
Impact of Direct to Consumer Genetic Testing
The rapid identification of genetic risk factors for common, complex diseases poses great opportunities and challenges for public health. Genetic information is increasingly being utilized as part of…- Ally
- Alzheimer's Disease
- Area
- Arthritis
- Authorization documentation