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Grant Abstract
Consensus guidelines for central IRBs in the multicenter study setting
The prevailing model for ethical review of multicenter clinical trials is a distributed system of reviews conducted by the Institutional Review Board (IRB) of each institution engaged in the conduct…- Clinical Trials
- Communication
- Conflict of Interest
- Consensus
- Counseling
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Grant Abstract
Ethically responsible clinical decision support for Lynch Syndrome screening
Dr. Korngiebel's long-term goal is to become an independent researcher at the intersection of bioethics, informatics, and genetic testing. To work toward this goal, she will receive rigorous…- Address
- Administrator
- Age
- Area
- base
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Grant Abstract
Increasing AIAN Research Engagement through a Culturally Adapted Ethics Training
American Indian and Alaska Natives (AIAN) face glaring health disparities, and AIAN-specific research lags behind other racial and ethnic data in addressing AIAN health concerns. Engaging AIAN…- Accidental Injury
- Address
- Affect
- Alaska Native
- Alcoholism
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Grant Abstract
Preparing for Emerging Applications of Noninvasive Prenatal Testing
Noninvasive prenatal genetic testing, which utilizes cell-free fetal DNA and advances in sequencing technology, is revolutionizing the practice of obstetrics. While currently used as a screen for a…- Aneuploidy
- base
- bench to bedside
- Blood specimen
- cell free fetal DNA
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Grant Abstract
The Research Ethics Education Program in Jordan
established countries in the Middle East and North Africa (MENA) region with a high per-capita university education and progressive research agenda. It is also the hub for pharmaceutical drug…- Academy
- Arab World
- Area
- Asians
- base
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Grant Abstract
Return of Results from Psychiatric Genomics Research: Attitudes and Barriers
This project employs a multi-method, transdisciplinary approach that combines ethnographic participant- observation, interview research methods, ethical, legal, and public policy analyses. The two…- Attitude
- authority
- Bipolar Disorder
- Caring
- Case Study
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Grant Abstract
Genomics-based Technologies: Access and Reimbursement Issues
Genomics-based technologies are increasingly used in clinical care and are highly relevant to public health because of their potential use in assessing risk, diagnosing, and developing treatment…- Algorithms
- anticancer research
- base
- Biology
- cancer therapy
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Grant Abstract
Interactive multimedia consent for biobanking
Interactive Multimedia Consent for Biobanking Abstract Many biobanks in the U.S. consent thousands of contributors of biospecimens and health information. There is growing interest in the efficiency…- biobank
- Caucasians
- Cognition
- Communities
- compare effectiveness
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Grant Abstract
Goals and Practices for Next Generation Prenatal Testing
Prenatal testing is evolving in two important ways: first, advances in genomic medicine mean that samples of fetal DNA obtained with invasive methods (such as amniocentesis) can be analyzed using…- Amniocentesis
- Aneuploidy
- Arts
- Birth
- Blood
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Grant Abstract
The Electronic Medical Records and Genomics (eMERGE) Network Phase III - Coordinating Center
The eMERGE project brings together researchers with a wide range of expertise in genomics, statistics, ethics, informatics, and clinical medicine from leading medical research institutions across…- Agreement
- Algorithms
- Arbitration
- biobank
- clinical implementation