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Grant Abstract
Appropriation, Adaptation, and Political Mobilization of Genomics Research
This project will analyze how US white nationalists are appropriating, adapting, politically mobilizing and changing themselves in response to contemporary genomics research. White nationalists have…- Admixture
- Advocate
- African
- Agreement
- American
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Grant Abstract
The Ethics of Inclusion: Diversity in Precision Medicine Research
A major challenge for precision medicine research is including historically under-represented groups in numbers sufficient to ensure statistically valid inferences of the influence of relevant risk…- Behavioral
- Biomedical Research
- Categories
- Collection
- Communities
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Grant Abstract
Using Ethics and User-Centered Design to Create Templates for EHR-Mediated Return of Genetic Test Results
Patient engagement is critical for implementation of the genomic component of precision medicine--with care taken to include the perspectives and needs of patients. Yet many patients may experience…- Big Data Methods
- Caring
- Characteristics
- Clinic
- Clinical
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Grant Abstract
Health care system-led familial risk notification: design and ethical assessment
Genetic testing has a multigenerational impact, as actionable pathogenic variants can identify multiple family members at risk. Currently in the United States, a person at actionable risk through…- actionable mutation
- Address
- base
- behavior test
- BRCA1 gene
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Grant Abstract
Demographic Patterns of Eugenic Sterilization in Three U.S. States: Mixed Methods Investigation of Reproductive Control of the Unfit
From the passage of the country's first sterilization law in Indiana in 1907 until the 1960s approximately 60,000 people were sterilized based on eugenic criteria that sought to regulate the…- Age
- Archives
- Attitude
- base
- Belief
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Grant Abstract
Development of recommendations and policies for genetic variant reclassification
As genomic sequence data are being produced faster and at lower cost, the most significant challenge in clinical genetic testing today is variant classification. Currently, there are marked…- adverse outcome
- Advocate
- Affect
- Agreement
- Algorithms
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Grant Abstract
Genetic data partnerships: Enabling equitable access within academic/private data sharing agreements
Candidate: Kayte Spector-Bagdady, JD, MBE, is an attorney and medical ethicist focused on the governance of secondary research use of human specimens and genetic data. Her long-term career goal is to…- career
- career development
- Clinical
- clinical care
- Communities
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Grant Abstract
Respect for Persons in the Genomics Research Enrollment Process: Incorporating Diverse Experiences and Attitudes
Stephanie Kraft, JD, is an Acting Instructor in the Division of Bioethics, Department of Pediatrics, University of Washington School of Medicine. She has a background in law and economics and has…- Advisory Committees
- Asians
- Attitude
- Award
- base
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Grant Abstract
Integrating Ethics into Machine Learning for Precision Medicine
The application of new computerized methods of data analysis to vast collections of medical, biological, and other data is emerging as a central feature of a broad vision of precision medicine (PM)…- Algorithms
- Artificial intelligence
- Awareness
- base
- Big Data
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Grant Abstract
Ethical, Legal, Social and Governance Issues in Non-Traditional Genetics and Genomics
A large and highly heterogeneous group of individuals conducts genetic and genomic research outside of traditional corporate and academic settings. They can be an important source of innovation, but…- agriculture
- Animals
- Archaea
- Attention
- Bacteria