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ELSIcon2022 Paper: Clinician experiences and perspectives on the use of polygenic risk scores in child and adolescent psychiatry
ELSIcon2022 • Paper • June 1, 2022 Gabriel Lázaro-Muñoz, Eric Storch, Stacey Pereira A growing body of research has begun to uncover the genetic architecture of psychiatric disorders such as…- Live
- Paper
- Screening for polygenic conditions and risk scores
- Genetic testing and screening
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ELSIcon2022 Paper: Diversity’s Pandemic Distractions
ELSIcon2022 • Paper • June 1, 2022 Jonathan Kahn Pandemic diseases have a nasty history of racialization. Covid-19 is no exception. Beyond the obvious racist invocations of the “China virus”…- Live
- Paper
- Population screening and public health genomics
- Health Disparities
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ELSIcon2022 Paper: How and why do researchers use “Ancestry”?
ELSIcon2022 • Paper • June 1, 2022 Anna Lewis, Bege Dauda, Santiago Molina As the ways in which race is used in biomedicine have come under scrutiny, including for contribution to race-…- Live
- Paper
- Language and categorization
- Ethnicity
- Use of race and ancestry in research and the clinic
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ELSIcon2022: Paper Session 7
ELSIcon2022 • Paper Session 7 • June 1, 2022 Includes discussion material from Jonathan Kahn, Anna Lewis, Monica Taylor-Desir, and James DuBois.- Live
- Paper
- Health Disparities
- Methodology and study design
- Ethnicity
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ELSIcon2022: Paper Session 8
ELSIcon2022 • Paper Session 8 • June 1, 2022 Includes discussion material from Stacey Pereira and Gabriel Lázaro-Muñoz.- Live
- Paper
- Genetic testing and screening
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ELSIcon2022 Panel: Rare Disease, Equity and Justice: Intersecting Disparities Across the Translational Spectrum
ELSIcon2022 • Panel 9 • June 1, 2022 Holly Tabor, Meghan Halley, Colin Halverson, Aaron Goldenberg The history of genetics is rooted in the characterization and etiology of rare inherited…- Live
- Panel
- Health Disparities
- Access to genetic screening and therapies
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ELSIcon2022 Paper: Seeking Diverse Inclusion in Bipolar Research: Lessons from a biobank
ELSIcon2022 • Paper • June 1, 2022 Karen Meagher, Monica Taylor-Desir How should biobanks recruit diverse cohorts from historically marginalized communities? Should they measure diversity via…- Live
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- Recruiting diverse participants to precision medicine research
- genomics research
- Biobanks
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ELSIcon2022 Panel: Sharing Data: Speedbumps on the Translational Trail
ELSIcon2022 • Panel 10 • June 1, 2022 Kathryn Maxson Jones, Vasiliki Rahimzadeh, Kayte Spector-Bagdady, Robert Cook-Deegan This panel features three talks by women researchers empirically…- Live
- Panel
- Data and data stewardship
- equity and justice in genetics
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ELSIcon2022 Paper: Sharing Qualitative Research Data: Addressing the Ethical and Logistical Challenges
ELSIcon2022 • Paper • June 1, 2022 James DuBois, Jessica Mozersky Qualitative data sharing (QDS) promises several benefits: enabling secondary analyses to extend project findings at low cost…- Live
- Paper
- Reflections on the ELSI field
- Methodology and study design
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ELSIcon2022 Panel: The Limits of Consent and Patterns of Coercion in U.S. Histories of Eugenic Sterilization
ELSIcon2022 • Panel 11 • June 1, 2022 Nicole Novak, Heather Dron, Marie Kaniecki, Levity Smith, Juan Gudino This panel showcases recent research by the Sterilization and Social Justice Lab, a…- Live
- Panel
- Eugenic sterilization in the 20th century
- Race, disability, and gender studies