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Video
ELSIcon2022 Networking Session: Ethical Topics Associated with Population Genomic Screening
ELSIcon2022 • Networking Session • June 1, 2022 Kimberly Foss, Kate Saylor This session was led by a genetic counselor and an ELSI researcher. Scientific advances have made genetic screening in…- Live
- Networking Session
- Population screening and public health genomics
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Video
ELSIcon2022 Networking Session: Late-Breaking Abstracts, June 1, 2022
ELSIcon2022 • Networking Session • Late-breaking Abstracts • June 1, 2022 Donrich Thaldar, Aubrey Mansfield, Nicole Novak, Lida Sarafraz, James Tabery, Bonginkosi Shozi- Live
- Networking Session
- Late-breaking Abstracts
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Video
ELSIcon2022 Late-Breaking: South Africans’ opinions on human heritable genome editing: Promoting equal access as key to the future
ELSIcon2022 • Networking Session • Late-breaking Abstracts • June 1, 2022 Donrich Thaldar, Bonginkosi Shozi A deliberative public engagement study among South Africans on the topic of…- Live
- Networking Session
- Late-breaking Abstracts
- Emerging technologies - public opinion and policy
- equity and justice in genetics
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Video
ELSIcon2022 Late-Breaking: Victims of Eugenic Sterilization in Utah: Demographics and Survivor Estimate
ELSIcon2022 • Networking Session • Late-breaking Abstracts • June 1, 2022 James Tabery, Nicole Novak, Lida Sarafraz, Aubrey Mansfield Eugenicists in America, at the beginning of the…- Live
- Networking Session
- Late-breaking Abstracts
- Eugenic sterilization in the 20th century
- Race, disability, and gender studies
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Video
ELSIcon2022 Trainee Networking Session: Working with NHGRI
ELSIcon2022 • Networking Session • June 1, 2022 Questions answered by NHGRI Program Officers Joy Boyer, Dave Kaufman, Nicole Lockhart, and René Sterling.- Live
- Networking Session
- NHGRI Q&A
- Trainees
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Video
ELSIcon2022 Plenary: Troubled Dreams: Genetics, Race, and the Search for Justice in Sickle Cell Disease
ELSIcon2022 • Plenary Session • June 2, 2022 Welcome and Introduction by Sandra Soo-Jin Lee, PhD. Plenary: "Gene Editing and Gene Therapy: The Case of Sickle Cell " presented by Keith Wailoo,…- Live
- Plenary Session
- Stigma and discrimination
- Gene Editing
- Sickle Cell
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Video
ELSIcon2022 Paper: COVID, Prenatal Genetic Testing, and the Digital Divide: Beyond Technology
ELSIcon2022 • Paper • June 2, 2022 Ruth M. Farrell, Christina Collart COVID and the events of the past year have brought to light the insidious issues of systemic racism, disparities, and…- Live
- Paper
- Access to genetic screening and therapies
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Video
ELSIcon2022 Paper: Disrupting the status quo: a new model for benefit sharing in genomics research, a case study from South Africa
ELSIcon2022 • Paper • June 2, 2022 Erin Burke, Michèle Ramsay, June Fabian Genetics researchers have earned the label “extractive biocolonialists” because they collect samples and fail to…- Live
- Paper
- Recruiting diverse participants to precision medicine research
- genomics research
- Biobanks
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Video
ELSIcon2022 Panel: Engagement with Historically Marginalized Communities: Methods, Positionality and ELSI in Precision Medicine Research
ELSIcon2022 • Panel Session 12 • June 2, 2022 Kyle B. Brothers, Nanibaa' A. Garrison, Maya Sabatello, Amy Lemke The practice of community engaged research is grounded in ethical, practical,…- Live
- Panel
- Recruiting diverse participants to precision medicine research
- genomics research
- Biobanks
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ELSIcon2022 Panel: Equity and Justice in Dementia Care: Perspectives on Ethical, Health, and Policy Implications of Tests and Treatments for Alzheimer's Disease and Related Dementias
ELSIcon2022 • Panel Session 13 • June 2, 2022 Hadley Stevens Smith, Emily Largent, Cheng Chen, Kathryn Phillips Advances in genetic and biomarker-based risk prediction, diagnosis, and treatment…- Live
- Panel
- Access to genetic screening and therapies