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Video
ELSIcon2022: Paper Session 12
ELSIcon2022 • Paper Session 12 • June 2, 2022 Includes discussion material from Carolyn Neuhaus, Johanna Crane, Marilyn Baffoe-Bonnie, K. Jameson Floyd, and Michelle Nichols.- Live
- Paper
- Health Disparities
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Video
ELSIcon2022 Paper: Participation in Sickle Cell Disease Clinical Research: How the Lived Experience Shapes Altruism
ELSIcon2022 • Paper • June 2, 2022 Marilyn S. Baffoe-Bonnie Recruiting participants for clinical studies is an essential component of biomedical research, and appealing to individuals’ altruism is…- Live
- Paper
- Motivation to participate in research
- Health Disparities
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Video
ELSIcon2022 Paper: Return of Secondary Genomic Findings: Experiences of Sickle Cell Disease Research Participants
ELSIcon2022 • Paper • June 2, 2022 K. Jameson Floyd, Ashley Buscetta, Vence Bonham While the body of research investigating research participants’ views on the return of actionable…- Live
- Paper
- Return of Results
- health disparities
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Video
ELSIcon2022 Paper: The Ethical, Legal, and Social Implications of Stroke Genomic and Biobanking Research in Sub-Saharan Africa: Community Member Perspectives and Factors for Consideration
ELSIcon2022 • Paper • June 2, 2022 Michelle Nichols, Arti Singh, Olorunyomi Olorunsogbon, Ezinne Uvere, Mayowa Ogunronbi, Sylvia Melikam, Joshua Akinyemi, Kolawole Wahab, Albert Alpalu, Fred S…- Live
- Paper
- Attitudes about sharing biological samples and health data
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Video
ELSIcon2022 Paper: The Goldilocks Conundrum: Disclosing Discrimination Risks in Informed Consent
ELSIcon2022 • Paper • June 2, 2022 Wendy Uhlmann, Sonia Suter, Aaron Scherer, Anya Prince Studies have shown that fear of genetic discrimination lowers participation in genomic research and…- Live
- Paper
- Stigma and discrimination
- Genetic testing and screening
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Video
ELSIcon2022 Panel: The Impact of Receipt of Genetic Test Results for Autism
ELSIcon2022 • Panel Session 16 • June 2, 2022 Julia Wynn, Paul Appelbaum, Robert Klitzman, Erik Parens Understanding of the genetic etiology of autism has expanded and the decreasing cost and…- Live
- Panel
- Genetic testing and screening
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Video
ELSIcon2022 Panel: Towards Justice- Race, ELSI, and Imagined Futures
ELSIcon2022 • Panel Session 17 • June 2, 2022 Melissa Creary, Kadija Ferryman ELSI has had to contend with the ways that the field has and has not adequately attended to race and racism.…- Live
- Panel
- Reflections on the ELSI field
- Gene therapy and gene editing
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Video
ELSIcon2022 Paper: Why do Primary Care Patients Pursue Genetic Testing as an Elective Clinical Service? Findings from the Sanford Chip Program
ELSIcon2022 • Paper • June 2, 2022 Jessica LeBlanc, Kurt D. Christensen, Emilie S. Zoltick, Megan Bell, Lauren N. Galbraith, Leila Jamal, Christine Y. Lu, Jennifer R. Leonhard, Dylan M. Platt,…- Live
- Paper
- Uptake of genetic testing
- Genetic testing and screening
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Video
ELSIcon2022 Late-Breaking: Concordance with Pharmacogenomic Clinical Decision Support Recommendations is High Following Preemptive Pharmacogenomic Testing
ELSIcon2022 • Networking Session • Late-breaking Abstracts • June 2, 2022 Kurt D. Christensen, Catherine Hajek, Joel Van Heukelom, Madison Hickingbotham, Amanda Massmann, Emilie Zoltick,…- Live
- Networking Session
- Late-breaking Abstracts
- tools
- precision medicine
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Video
ELSIcon2022 Late-Breaking: Impact of a direct-to-consumer (DTC) report on Alpha-1 antitrypsin deficiency (AATD) risk on clinical diagnosis of disease and on self-reported behaviors
ELSIcon2022 • Networking Session • Late-breaking Abstracts • June 2, 2022 Sarah Elson Background: Alpha-1 antitrypsin deficiency (AATD) is an autosomal co-dominant condition that predisposes…- Live
- Networking Session
- Late-breaking Abstracts
- precision medicine