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Video
ELSIcon2022: Paper Session 17
ELSIcon2022 • Paper Session 17 • June 3, 2022 Includes discussion material from Kirstin Matthews, PhD, and Shameka Poetry Thomas, PhD.- Live
- Paper
- reproductive genetics
- Gene therapy and gene editing
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Video
ELSIcon2022 Paper: Parent-reported barriers and facilitators to accessing care recommended from genomic sequencing in pediatric cancer patients
ELSIcon2022 • Paper • June 3, 2022 Presented by: Blake Vuocolo Mary Majumder, Jill Robinson, Amanda Gutierrez, Lauren Desrosiers, Sarah Scollon, D. Will Parsons, Sharon Plon, Amy McGuire…- Live
- Paper
- Access to genetic screening and therapies
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Video
ELSIcon2022 Paper: Reproductive Concerns of Disabled Women: Whose Definitions of Disability are We Embracing?
ELSIcon2022 • Paper • June 3, 2022 Presented by: Dana Ernst • Co-Authors: Laren Clark, Sara Simonsen, Jacqueline Kent-Marvick, Elinor Ochs • Special thanks: James Tabery, Rebecca Anderson…- Live
- Paper
- Language and categorization
- reproductive genetics
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Video
ELSIcon2022: Moderated Plenary Panel
ELSIcon2022 • Moderated Plenary Panel • June 3, 2022 This final panel discussion features keynote and plenary speakers Ruqaiijah Yearby, Teresa Blankmeyer-Burke, and Keith Wailoo, moderated by…- Live
- Plenary Session
- structural racism
- ableism
- audism
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Video
Advocacy and Allyship in ELSI: Opportunities and Challenges
Objectivity is a weight-bearing pillar in scientific inquiry, a norm to ensure that research and its outcomes are “value free” and unaffected by subjective value judgement. Yet ELSI research, as a…- Advocacy
- allyship
- policymaking
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Video
INSIGHT @ Work: An Interdisciplinary Study on the Ethical, Legal and Social, Implications (ELSI) of Voluntary Workplace Genomic Testing (wGT)
ELSIcon2022 • Pre-recorded Flash Alyx Vogle, CGC; Betty Cohn; Rebecca Ferber; Kerry Ryan; Gregory Feero; Debra Mathews; Anya Prince; Kayte Spector-Bagdady; Kunai Sanghavi; Wendy…- Genetic Testing
- Genetic Screening
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Video
ELSI and the New Precision Stewards?
ELSIcon2022 • Pre-recorded Paper Karen Meagher, PhD - Mayo Clinic Sara Watson ELSI and the New Precision Stewards? Advances in pathogen genomics and molecular epidemiology are keeping…- Population Genetics
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Video
A Survey on Public Perception toward the Korean National Bio Big Data Project
ELSIcon2022 • Pre-recorded Paper Jihyun Yang - Yonsei University College of Medicine Ilhak Lee Hyun-Young Park Chai Hee Youl Jeong Eun Kim Hannah Kim Jihyun Yang A Survey on Public…- law
- Regulation
- Governance
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Video
An Exploration of Family Connection and African Ethnic Identity Development Among African Americans Finding African Genetic Relatives While Using Consumer Genetic Genealogy Services
ELSIcon2022 • Pre-recorded Flash LaKisha David, PhD - University of Pennsylvania, Postdoctoral Fellow An Exploration of Family Connection and African Ethnic Identity Development Among African…- identity
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Video
White racial framing and comfort with medical research: a critical analysis
ELSIcon2022 • Pre-recorded Paper Paige Nong - University of Michigan Melissa Creary Jodyn Plat Sharon Kardia White racial framing and comfort with medical research: a critical analysis…- Public Health