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Video
White racial framing and comfort with medical research: a critical analysis
ELSIcon2022 • Pre-recorded Paper Paige Nong - University of Michigan Melissa Creary Jodyn Plat Sharon Kardia White racial framing and comfort with medical research: a critical analysis…- Public Health
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Video
Investigating an Ethos of Duty in Precision Medicine Research Calls for Minority Participation
ELSIcon2022 • Pre-recorded Paper Rachel Bailey, ABD - University of Georgia, Graduate Student Teaching Assistant: Investigating an Ethos of Duty in Precision Medicine Research Calls…- Education
- public reception of genetic science
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Video
Innovating Equitable Communication Modalities for Patient Activation and Cascade Testing for Familial Hypercholesterolemia: Cases of Ethical, Legal, and Social Complexities from a Pragmatic Trial
ELSIcon2022 • Pre-recorded Panel Gemme Campbell-Salome - Geisinger Amy Sturm Kelly Morgan Eric Tricou, MS, CGC - Geisinger, Genetic Counselor Innovating Equitable Communication Modalities for…- Genetic Testing
- Genetic Screening
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Video
The All of Us Responsible Conduct of Research Training: Fostering Ethical and Socially Responsible Research with Data from All of Us Participants
ELSIcon2022 • Pre-recorded Panel Sonya Jooma - All of Us Research Program, National Institutes of Health, Deputy Policy Director Katherine Blizinsky, PhD - All of Us Research Program, National…- precision medicine
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Video
Will it be easier to cure sickle cell disease through gene therapy than prevent the disease through pre-implantation genetic testing for the selection of unaffected embryos?
ELSIcon2022 • Pre-recorded Flash Jeanne O'Brien, MD, MSc - Shady Grove Fertility, Rockville MD Sigal Klipstein, MD - InVia Fertility Specialists Joshua Combs - Eunice Kennedy Shriver National…- gene therapy
- Gene Editing
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Video
Decoloniality and Genetic Ancestry: Situating the "African Genome"
The language and practice of social ancestry and genetics are steeped in history. They increasingly influence discussions about the practice of science and the role of communities, yet the meanings…- decoloniality
- ancestry
- Africa
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Video
Legal Challenges to Newborn Screening Research
The last few years have seen calls for more diverse and representative collections of biological samples for population based translational research. This need has sparked increased interest in using…- Newborn screening
- Consent
- blood spots
- Legal
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Video
ELSIcon2022 Panel: Privacy and utility of genetic testing among families with hereditary cancers living in three countries: The International Cascade Screening experience
ELSIcon2022 • Panel 5 • May 31, 2022 Silvia Barnoy, Efrat Dagan, Sue Kim, Maria Caiata-Zufferey, Maria Katapodi Hereditary breast and ovarian cancer (HBOC) and Lynch syndrome (LS) are monogenic…- Live
- Panel
- Disclosure of genetic risk information to relatives
- equity and justice in genetics
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Video
1. ELSI Research Funding through NIH and NHGRI: An Introduction
Updated on 6/28/2022 | Uploaded on 11/6/2020 This is the first of a series of videos designed to provide guidance on the various steps involved in developing and submitting a grant application to… -
Video
Impact of SCOTUS's Dobbs Decision on Prenatal Genomics Research and Practice
The upcoming Supreme Court’s decision in Dobbs v. Jackson Women’s Health is likely to change the landscape of clinical practice in prenatal genomic medicine. With the prospect of overturning Roe v.…- federal policy
- Reproductive Health