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Publication
Care of children with trisomy 18 in Japan
American Journal of Medical Genetics. Part ADigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Perceptions of discrimination among persons who have undergone predictive testing for Huntington's disease
American Journal of Medical Genetics. Part B, Neuropsychiatric GeneticsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Responsible patient advocacy: Perspectives from the Alpha-1 Foundation
American Journal of Medical Genetics. Part ADigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Ethical and policy lessons to be learned from a family with inherited bone marrow failure
American Journal of Medical Genetics. Part ADigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
All in the family: Disclosure of "unwanted" information to an adolescent to benefit a relative
American Journal of Medical Genetics. Part ADigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Consumer contribution to the delivery of genetic health services
American Journal of Medical Genetics. Part ADigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Empirical data about women's attitudes toward a biobank focused on pregnancy outcomes
American Journal of Medical Genetics. Part ADigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Attitudes regarding predictive genetic testing in minors: A survey of European clinical geneticists
American Journal of Medical GeneticsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Should genetic testing for BRCA1/2 be permitted for minors? Opinions of BRCA mutation carriers and their adult offspring
American Journal of Medical GeneticsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Ethical and policy issues in pediatric genetics
American Journal of Medical GeneticsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…