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ELSI Publications and Products Database, National Human Genome Research Institute (NHGRI)
The ELSI Publications and Products Database is a collection of journal articles, books, and other materials that were produced with funding from the ELSI Research Program at the National Human Genome…- ELSI
- publication database
- ELSI Research Program
- Education
- Research
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Utah Center of Excellence in Ethical, Legal and Social Implications Research
Jeffrey R. Botkin is Principal Investigator of the Utah Center of Excellence in Ethical, Legal and Social Implications Research (UCEER) at the University of Utah in Salt Lake City, UT, USA. UCEER…- CEER
- population genetic screening
- women
- Children
- Jeffrey Botkin
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Center for Genetic Privacy and Identity in Community Settings (GetPreCiSe)
Ellen W. Clayton and Bradley Malin are Co-Directors of the Center for Genetic Privacy and Identity in Community Settings (GetPreCiSe), an NIH Center of Excellence in Ethics Research at Vanderbilt…- CEER
- genetic privacy
- genetic identity
- genomic data re-identification
- Policy
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Center for Bridging Infectious Disease, Genomics, and Society (BRIDGES), Johns Hopkins Berman Institute of Bioethics
Gail Geller and Jeffrey Kahn are Co-Principal Investigators of the Center for Bridging Infectious Disease, Genomics, and Society (BRIDGES) at the Johns Hopkins Berman Institute of Bioethics. BRIDGES…- CEER
- Gail Geller
- Jeffrey Khan
- infectious diseases
- genomic technology
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Center for the Ethics of Indigenous Genomic Research (CEIGR)
Paul Spicer is Principal Investigator of the Center for the Ethics of Indigenous Genomic Research (CEIGR). CEIGR examines how genomic information used in medical care may impact American Indian and…- CEER
- Alaska Native
- American Indian
- Indigenous
- culture
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Center for Research on Ethical, Legal & Social Implications of Psychiatric, Neurologic & Behavioral Genetics
Paul Appelbaum is Principal Investigator of the ELSI Center for Psychiatric, Neurologic & Behavioral Genetics at Columbia University Medical Center. The center investigates the ELSI challenges…- CEER
- Psychiatric
- Neurologic
- Behavioral
- PNB Genetics
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H3ABioNet
H3ABioNet, a Pan African Bioinformatics Network for the Human Heredity and Health in Africa (H3Africa) consortium, was established to develop bioinformatics capacity in Africa and enable genomics…- H3ABioNet
- H3Africa
- consortium. bioinformatics
- Africa
- genomics data analysis
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NIH Sharing Policies and Related Guidance on NIH-Funded Research Resources
This resource includes links to policies, repositories, and guidance for the sharing of results and accomplishments of the activities funded by the National Institutes of Health (NIH) with the…- NIH
- NIH policy
- data sharing
- genomic data
- data resources
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The Sulston Project
The Sulston Project, headed by co-principal investigators Robert Cook-Deegan, M.D., and Amy McGuire, J.D., Ph.D., aims to examine the challenges associated with developing a knowledge commons to…- inherited cancer-risk variants
- policy solutions
- data contributors
- data generators
- Data Sources
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UCLA Institute for Society & Genetics
The UCLA Institute for Society and Genetics, directed by Hannah Landecker, Ph.D., incorporates scientists fully in the process of understanding ethical, legal, and societal impacts of the…- societal impact
- Genetic Research
- genomic research
- biotechnology
- UCLA