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Regulatory & Ethics Toolkit, Global Alliance for Genomics and Health (GA4GH)
The Regulatory & Ethics Toolkit produced by the Global Alliance for Genomics and Health (GA4GH) contains ready-to-use regulatory and ethics guidance for genomic and health-related data sharing…- GA4GH
- policy-framing
- genomic data
- Human Rights
- genomic data sharing
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Genomic Data Toolkit, Global Alliance for Genomics and Health (GA4GH)
The Genomic Data Toolkit produced by the Global Alliance for Genomics and Health (GA4GH) includes resources to support genomic data sharing such as machine readable consent guidance, a catalogue of…- GA4GH
- policy-framing
- genomic data
- Human Rights
- genomic data sharing
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Additional Resource
Inter-university Consortium for Political and Social Research (ICPSR), University of Michigan
ICPSR is an international consortium of more than 750 academic institutions and research organizations that provides leadership and training in data access, curation, and methods of analysis for the…- data archive
- Social Sciences
- interntional consurtium
- research organizations
- data access
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The Qualitative Data Repository (QDR), Syracuse University
The Qualitative Data Repository (QDR) is a dedicated archive for storing and sharing digital data collected via qualitative and multi-method research in the social sciences (with an initial focus on…- qualitative data
- data repository
- QDR
- digital data
- data archive
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Public Health Genomics and Precision Health Knowledge Base (PHGKB), Centers for Disease Control and Prevention (CDC)
The CDC Public Health Genomics and Precision Health Knowledge Base (PHGKB) is an online, continuously updated, searchable database of published scientific literature, CDC resources, and other…- CDC
- PHGKB
- Genomics
- precision health
- database
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DNA Patent Database, Kennedy Institute of Ethics at Georgetown University
The DNA Patent Database, curated by Duke Institute for Genome Science and Policy and the Kennedy Institute of Ethics at Georgetown University, is a searchable collection of DNA-based patents issued…- patent
- Policy
- USPTO
- genomic
- trademark
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ELSI Publications and Products Database, National Human Genome Research Institute (NHGRI)
The ELSI Publications and Products Database is a collection of journal articles, books, and other materials that were produced with funding from the ELSI Research Program at the National Human Genome…- ELSI
- publication database
- ELSI Research Program
- Education
- Research
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Utah Center of Excellence in Ethical, Legal and Social Implications Research
Jeffrey R. Botkin is Principal Investigator of the Utah Center of Excellence in Ethical, Legal and Social Implications Research (UCEER) at the University of Utah in Salt Lake City, UT, USA. UCEER…- CEER
- population genetic screening
- women
- Children
- Jeffrey Botkin
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Center for Genetic Privacy and Identity in Community Settings (GetPreCiSe)
Ellen W. Clayton and Bradley Malin are Co-Directors of the Center for Genetic Privacy and Identity in Community Settings (GetPreCiSe), an NIH Center of Excellence in Ethics Research at Vanderbilt…- CEER
- genetic privacy
- genetic identity
- genomic data re-identification
- Policy
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Center for Bridging Infectious Disease, Genomics, and Society (BRIDGES), Johns Hopkins Berman Institute of Bioethics
Gail Geller and Jeffrey Kahn are Co-Principal Investigators of the Center for Bridging Infectious Disease, Genomics, and Society (BRIDGES) at the Johns Hopkins Berman Institute of Bioethics. BRIDGES…- CEER
- Gail Geller
- Jeffrey Khan
- infectious diseases
- genomic technology