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Grant Abstract
Using virtual counselors to overcome genetic literacy barriers: Project VICKY
Rapid advances in human genetics have prompted concerns about the public's readiness to process and utilize the knowledge gained to make informed decisions about their health. To facilitate…- Behavioral
- Boston
- Caring
- Centers for Disease Control and Prevention (U.S.)
- Chronic Disease
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Grant Abstract
Families At Risk: Long-term Impact of Huntington's Presymptomatic Genetic Testing
Huntington's disease (HD) has for decades served as a model for how we think about genetic testing, and its benefits and risks for tested individuals and their families. In 1983, the gene for HD…- Adult
- Benefits and Risks
- career
- Child
- Chromosome 4
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Grant Abstract
Harmonizing Privacy Laws to Enable International Biobank Research
In recent years, researchers from around the world have begun developing repositories of tissues and socio-demographic data for genetics and other biomedical research. These biobanks, often linked…- biobank
- Biomedical Research
- Clinical
- Code
- Collaborations
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Grant Abstract
Returning Exome and Whole Genome Results To Underserved Minority Populations
Exome sequencing (ES) and whole genome sequencing (WGS) are transformative new tools for discovery of genetic risk factors for both rare and common diseases and offer the potential of personalized…- Adult
- African American
- American
- Anthropology
- Anxiety
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Grant Abstract
Returning genetic research panel results for breast cancer susceptibility
Genetic screening for cancer susceptibility (e.g. BRCA1/2) has become a standard evidence-based practice in cancer prevention and has proven to reduce breast cancer morbidity and mortality. Yet, most…- American Society of Clinical Oncology
- anticancer research
- Award
- behavioral outcome
- Benefits and Risks
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Grant Abstract
Mapping the Intersection: Self-identification and Genetic Ancestry
Assignment of individuals to categories of race, ethnicity and ancestry impacts health and public policy, yet the practice remains both scientifically and culturally controversial. The established…- African American
- Altruism
- Area
- Attitude
- base
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Grant Abstract
Dyadic Influence in Genomic Medicine: Couples' Beliefs, Disclosures, & WEllbeing
Genomic medicine has, on one hand, the power to predict potentially debilitating disease before its actual onset; on the other hand, it creates challenges for patients in determining how to assess…- Adult
- Affect
- alpha 1-Antitrypsin Deficiency
- base
- Behavior Therapy
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Grant Abstract
Consensus guidelines for central IRBs in the multicenter study setting
The prevailing model for ethical review of multicenter clinical trials is a distributed system of reviews conducted by the Institutional Review Board (IRB) of each institution engaged in the conduct…- Clinical Trials
- Communication
- Conflict of Interest
- Consensus
- Counseling
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Grant Abstract
Ethically responsible clinical decision support for Lynch Syndrome screening
Dr. Korngiebel's long-term goal is to become an independent researcher at the intersection of bioethics, informatics, and genetic testing. To work toward this goal, she will receive rigorous…- Address
- Administrator
- Age
- Area
- base
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Grant Abstract
Increasing AIAN Research Engagement through a Culturally Adapted Ethics Training
American Indian and Alaska Natives (AIAN) face glaring health disparities, and AIAN-specific research lags behind other racial and ethnic data in addressing AIAN health concerns. Engaging AIAN…- Accidental Injury
- Address
- Affect
- Alaska Native
- Alcoholism