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Grant Abstract
Human Genome Project: Community Conversations
This 3-Year Project (Amended Application) seeks support for an innovative inter-regional public education model, in New York and Arizona, aimed at developing and using public libraries as centers for…- biotechnology
- Clinical Research
- education evaluation /planning
- Ethics
- Genetic Screening
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Grant Abstract
Dissemination of a BRCA1 Predisposition Testing Program
This project will evaluate a BRCA1 predisposition testing program modeled closely on the Huntington Disease paradigm for members of previously identified families in which cancer susceptibility has…- breast neoplasms
- cancer prevention
- cancer risk
- family genetics
- Female
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Grant Abstract
Prenatal Cytogenetic Diagnosis Using Comparative Genomic Hybridization Microarray
This is a competing renewal to continue our investigations of the use of molecular cytogenetic testing by array copy number analysis in prenatal diagnostic testing. We have completed a prospective…- Academic advising
- Address
- advanced maternal age
- Affect
- Age
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Grant Abstract
The ELSI Electronic Case Book Project
This pilot project will develop a World-Wide Web document, the ELSI Electronic Case Book, to introduce primary care physicians and non physician providers to their future roles as facilitators of the…- allied health education
- behavioral /social science research tag
- biotechnology
- Books
- Ethics
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Grant Abstract
Ethical and Policy Issues in Cystic Fibrosis Screening
This project will focus on individuals and families receiving care from a health maintenance organization. The assessment of the ethical and policy issues in CF screening seeks to determine the level…- autosomal recessive trait
- coping
- Cystic Fibrosis
- dyadic interaction
- Ethics
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Grant Abstract
UCEER: Utah Center for Excellence in ELSI Research P20
The University of Utah Center for Excellence in ELSI Research (UCEER) will conduct strategic planning for ELSI research, training and mentoring, and conduct two pilot projects. The focus of the UCEER…- Aneuploidy
- Child
- Childhood
- Communication
- Communities
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Grant Abstract
Evaluating Use of Genetic Information: A Model Process
Multiple elements contribute to the successful translation of genetic advances into improved health outcomes. This project will address these elements through analysis of a series of genetic testing…- case history
- Clinical Research
- Ethics
- Experimental Designs
- genetic disorder diagnosis
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Grant Abstract
Culture and Family Interpretation of Genetic Disorders
The overall aim of this ethnographic and longitudinal project is to assess how parents from different cultural backgrounds who have a child or who are at risk for having a child with a genetic…- African American
- behavioral /social science research tag
- Belief
- caucasian American
- Clinical Research
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Grant Abstract
Genetics of Common Heritable Disorders in Venezuela
The goal of the proposed research training program is to strengthen the capacity of Venezuelan scientists based at the University of Zulia to study genetics of common hereditable disorders relevant…- Bioinformatics
- Clinical Research
- cooperative study
- education evaluation /planning
- Ethics
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Grant Abstract
Views and Approaches Toward Research Integrity Among IRBs
IRBs can play vital roles in observing and responding to research integrity (Rl) issues among principal investigators (Pis), yet how these boards view and approach these roles has not been seriously…- Clinical Research
- conflict
- Education
- Interview
- Leadership