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Grant Abstract
Developing Educational Approaches to Genomics for Mexican-Americans in East Los Angeles (HAPMAP Supplement)
The goal of this project is to collect cell samples from 40 trios of Mexican-American background for NHGRIs HapMap project, with cells being deposited at the Coriell Institute for Medical Research…- age difference
- Clinical Research
- community
- education evaluation /planning
- educationally disadvantaged
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Grant Abstract
Genetic Research and the Navajo Nation: Context of and Attitudes to the Moratorium
The Navajo Nation placed a moratorium on genetic research studies in 2002, yet the tribe has high rates of genetic diseases and disorders. Historical distrust, fears of exploitation, and limited…- Attitude
- biomedical scientist
- Communities
- Community Consents
- Disease
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Grant Abstract
Impact of Privacy Environments for Personal Health Data on Patients
A big data ecosystem is evolving in our society in which people may have, or feel they have, little control over the flow of their personal health information, and thus their privacy. Further,…- Adult
- Affinity
- Area
- base
- Behavioral
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Grant Abstract
A Risk Management Framework for Identifiability in Genomics Research
When the Human Genome Project was completed almost ten years ago it cost millions of dollars to sequence an individual's genome. Yet, the evolution of high-throughput sequencing and…- Academic Medical Centers
- Address
- Adopted
- Agreement
- Back
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Grant Abstract
Genetics, Genomic Research, and Consent: Attitudes of Pediatric Cancer Survivors
As genetics and genomics become core features of clinical medicine, cancer survivors will be increasingly asked to participate in genomic research and will be offered the option of genetic…- Attitude
- Children
- Clinical Research
- Genetic Counseling
- Genetics
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Grant Abstract
Values, Attitudes and Beliefs in Obesity Genetic Testing
This pilot project explores the values, attitudes and beliefs of affected adults and parents of affected youths about genetic testing for obesity. Obesity is an extensive problem in health care, with…- Attitude
- behavior test
- behavioral /social science research tag
- Belief
- Clinical Research
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Grant Abstract
MBARARA UNIVERSITY RESEARCH ETHICS EDUCATION PROGRAM (MUREEP)
The volume of international research in sub Saharan Africa is increasing largely because of the continents unique high burden of diseases such as malaria, HIV and more recently non-communicable…- Address
- Administrator
- Africa South of the Sahara
- African
- Award
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Grant Abstract
Center for ELSI Research on Psychiatric Neurologic and Behavioral Genetics
Research on the genetics of Psychiatric, Neurologic, and Behavioral (PNB) phenotypes reveals a panorama of complexity that creates several challenges: 1) the data are difficult for clinicians to…- Affect
- Area
- base
- Behavior Disorders
- Behavioral
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Grant Abstract
Secondary Uses of Health Information: Patient Preferences for Sharing and Consent
Health information technology (HIT) is believed to be central to improving the quality and cost effectiveness of health care in the United States. As a result of recent major federal investment, the…- Address
- American
- Belief
- Caring
- Clinical
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Grant Abstract
Goals and Practices for Next Generation Prenatal Testing
Prenatal testing is evolving in two important ways: first, advances in genomic medicine mean that samples of fetal DNA obtained with invasive methods (such as amniocentesis) can be analyzed using…- Amniocentesis
- Aneuploidy
- Arts
- Birth
- Blood