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Video
ELSIcon2022 Paper: Parent-reported barriers and facilitators to accessing care recommended from genomic sequencing in pediatric cancer patients
ELSIcon2022 • Paper • June 3, 2022 Presented by: Blake Vuocolo Mary Majumder, Jill Robinson, Amanda Gutierrez, Lauren Desrosiers, Sarah Scollon, D. Will Parsons, Sharon Plon, Amy McGuire…- Live
- Paper
- Access to genetic screening and therapies
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Video
ELSI Friday Forum: Biobanking in the Era of COVID
Biobanking is a crucial element of the medical and public health response to COVID-19 and future pandemics, as the storage and distribution of biospecimens and data become a driver of current and…- Biobanking
- Covid genomics
- Biobank Ethics
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Video
ELSIcon2022 Paper: Physician Perspectives on Polygenic Risk Scores
ELSIcon2022 • Paper • May 27, 2022 Stephanie M. Fullerton, David R. Crosslin, Gail P. Jarvik, Susan Trinidad Polygenic risk scores (PRS) use dozens to millions of genotypes, each usually…- Screening for polygenic conditions and risk scores
- Public Health
- Paper
- Pre-Recorded
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Video
ELSIcon2022 Panel: Rare Disease, Equity and Justice: Intersecting Disparities Across the Translational Spectrum
ELSIcon2022 • Panel 9 • June 1, 2022 Holly Tabor, Meghan Halley, Colin Halverson, Aaron Goldenberg The history of genetics is rooted in the characterization and etiology of rare inherited…- Live
- Panel
- Health Disparities
- Access to genetic screening and therapies
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Video
ELSIcon2022 Flash: Patients’ expectations of benefits from large-panel genomic tumor testing in rural community oncology practices
ELSIcon2022 • Flash • June 3, 2022 Eric Anderson, Paul Han Large-panel genomic tumor testing (GTT) is a new technology that promises to make cancer treatment more precise. However, GTT also…- Live
- Flash
- Uptake of genetic testing
- Genetic testing and screening
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Video
ELSIcon2022 Flash: Self-Identified Spirituality and Interest in Genetic Testing for Hereditary Cancer Risk
ELSIcon2022 • Flash • May 27, 2022 Tesla Theoryn, Deborah J. Bowen, EJ Dusic, Kevin C. Cain, Brian Shirts, Elizabeth Swisher, Jeannine Brant Genetic testing for cancer risk can reduce the burden of…- Uptake of genetic testing
- Genetic testing and screening
- Flash
- Pre-Recorded
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Video
ELSIcon2022 Networking Session: Ethical Aspects of Reproductive Genetic Carrier Screening: Sharing Insights
ELSIcon2022 • Networking Session • May 31, 2022 Lisa Dive, Ainsley Newson We invite congress attendees with interests in reproductive genetic carrier screening (RGCS) to join us for a discussion…- Live
- Networking Session
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Video
Exploring Difference in the Biology Classroom: Engaging with Genetic Disability and Difference
Presenters: Kara Ayers, PhD & Joel Michael Reynolds, PhD Co-Moderators: Rob O'Malley, PhD & Marnie Gelbart, PhD Date: March 8 2023, 3-4 pm PT / 6-7 pm ET…- Continuing Education
- disability
- biology education
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Video
Genomics and Infectious Disease: Scientific and ELSI Issues of COVID
Genomics is being used in several distinct ways to understand and address the Covid-19 pandemic. Pathogen genomics investigates the genetics of the virus itself and enables identification and…- genomics and infectious disease
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Video
ELSIcon2022 Paper: Sharing Qualitative Research Data: Addressing the Ethical and Logistical Challenges
ELSIcon2022 • Paper • June 1, 2022 James DuBois, Jessica Mozersky Qualitative data sharing (QDS) promises several benefits: enabling secondary analyses to extend project findings at low cost…- Live
- Paper
- Reflections on the ELSI field
- Methodology and study design