
ELSI in Action: Eight Presentations from the ELSI Virtual Forum
The ELSI Virtual Forum, held online in June 2020, presented eight of the talks planned for the 2020 ELSI Congress, sadly canceled due to the pandemic. The recorded presentations are now available in the CERA Video archive and are well worth watching for anyone who missed the live events. Please click on any title for more information and to watch the video.
Integrating ELSI and Genomics: Past, Present, and Future (Keynote)
Eric Juengst, PhD; Pilar Ossario, JD, PhD; Eric Green, MD, PhD
Moderator: Amy McGuire, JD, PhD
Studying America’s Eugenics Era through an ELSI Lens: Data, Context, and Relevance
Natalie Lira, PhD; Nicole Novak, PhD, MSc; Elyse Thulin, MS; Alexandra Minna Stern, PhD
Polygenic Risk Scores & Behavioral Traits: Interrogating the Science & Ethics
Dalton Conley, PhD; Michelle Meyer, JD, PhD; Steve Hyman, MD
Moderator: Paul Appelbaum, MD
New Models for Ethical AI in Precision Medicine: Empirical and Normative ELSI Inquiry
Pamela Sankar, PhD; David Magnus, PhD; Ariadne Nichol, BA; Mildred Cho, PhD
CRISPR and Human Identity: Governing Germline Gene Editing
Rosemarie Garland-Thomson, PhD; George Daley, MD; Bartha Knoppers, PhD
Moderator: Josephine Johnston, PhD
Engaging Participants as Partners: ELSI Considerations in Large-Scale Precision Medicine Research
Alecia M. Fair, DrPH; Karriem Watson, DHSc, MS, MPH; Elizabeth Cohn, RN, PhD; Consuelo Wilkins, MD, MSCI
Ethical Frameworks for Research Collaboration with Indigenous Communities
Chief Lynn Malerba, DNP, MPA; Nanibaa’ Garrison, PhD; Katrina Claw, PhD;
Moderator: Vanessa Hiratsuka, PhD
To Catch a Killer: Law Enforcement Uses of DNA Databases
James Hazel, JD, PhD; Jennifer Wagner, JD, PhD; Christi Guerrini, JD, MPH; Amy McGuire, JD, PhD