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ELSI in Action: Eight Presentations from the ELSI Virtual Forum

The ELSI Virtual Forum, held online in June 2020, presented eight of the talks planned for the 2020 ELSI Congress, sadly canceled due to the pandemic.  The recorded presentations are now available in the CERA Video archive and are well worth watching for anyone who missed the live events. Please click on any title for more information and to watch the video.

 

Integrating ELSI and Genomics: Past, Present, and Future (Keynote)

Eric Juengst, PhD; Pilar Ossario, JD, PhD; Eric Green, MD, PhD

Moderator: Amy McGuire, JD, PhD

 

Studying America’s Eugenics Era through an ELSI Lens: Data, Context, and Relevance

Natalie Lira, PhD; Nicole Novak, PhD, MSc; Elyse Thulin, MS; Alexandra Minna Stern, PhD

 

Polygenic Risk Scores & Behavioral Traits: Interrogating the Science & Ethics

Dalton Conley, PhD; Michelle Meyer, JD, PhD; Steve Hyman, MD

Moderator: Paul Appelbaum, MD

 

New Models for Ethical AI in Precision Medicine: Empirical and Normative ELSI Inquiry

Pamela Sankar, PhD; David Magnus, PhD; Ariadne Nichol, BA; Mildred Cho, PhD

 

CRISPR and Human Identity: Governing Germline Gene Editing

Rosemarie Garland-Thomson, PhD; George Daley, MD; Bartha Knoppers, PhD

Moderator: Josephine Johnston, PhD             

 

Engaging Participants as Partners: ELSI Considerations in Large-Scale Precision Medicine Research

Alecia M. Fair, DrPH; Karriem Watson, DHSc, MS, MPH; Elizabeth Cohn, RN, PhD; Consuelo Wilkins, MD, MSCI

 

Ethical Frameworks for Research Collaboration with Indigenous Communities

Chief Lynn Malerba, DNP, MPA; Nanibaa’ Garrison, PhD; Katrina Claw, PhD; 

Moderator: Vanessa Hiratsuka, PhD

 

To Catch a Killer: Law Enforcement Uses of DNA Databases

James Hazel, JD, PhD; Jennifer Wagner, JD, PhD; Christi Guerrini, JD, MPH; Amy McGuire, JD, PhD


 

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