ELSI Presentations at ASBH 2023

The following is a list of ELSI and ELSI-related sessions at ASBH 2023. Please email us at [email protected] if you would like to add your presentation.

Thursday, October 12, 2023

ELSI Affinity Group - Location: Essex AB (Fourth Floor)

7:00 AM - 8:00 AM ET

• Moderator: Gabriel Lázaro-Muñoz, PhD, JD, Assistant Professor, Center for Bioethics, Harvard Medical School; Department of Psychiatry, Massachusetts General Hospital
• Presenter: Kadija Ferryman, PhD, Assistant Professor, Johns Hopkins Bloomberg School of Public Health

Paper Presentations: Implementing Genetic Testing - Location: Essex C (Fourth Floor)

8:15 AM – 9:30 AM ET

• A Normative Justification for Health-System Led Notification of Relatives Eligible for Cascade Genetic Testing, Presenter: Leila Jamal, ScM, PhD (she/her/hers), NIH Law, Public Health Policy, Organizational Ethics
• Ethical Considerations for the Universal Genetic Testing of Cancer Patient, Presenter: Andrew Schildcrout (he/him/his), Mayo Clinic, Rochester, Minnesota
• Genetics and Democracy: Deliberative Mini-Publics and GMO Decision-Making, Presenter: Naomi Scheinerman, Assistant Professor, Ohio State University, Philadelphia, Pennsylvania

Panel Presentation: The Impact of Clinical Algorithms on Racial and Ethnic Disparities - Findings from a Systematic Review, and Critical Discussion of Policy Options and Value Tradeoffs - Location: Laurel AB (Fourth Floor)

8:15 AM – 9:30 AM ET

• Presenter: Kelley Tipton, MPH, Associate Director, ECRI-Penn Medicine Evidence-based Practice Center, Plymouth Meeting, Pennsylvania
• Presenter: Harald Schmidt, PhD, MA, University of Pennsylvania, Philadelphia, Pennsylvania
• Presenter: Shazia M. Siddique, MD, MSHP (she/her/hers), Assistant Professor of Medicine, University of Pennsylvania
• Presenter: Jaya Aysola MD, DTMH, MPH, Executive Director, Center for Health Equity Advancement; and Associate Professor, Medicine and Pediatrics, Perelman School of Medicine

Workshop: Educating on Evolving Technologies: Case-Based Learning for Ethics of Healthcare AI - Location: Falkland (Fourth Floor)

8:15 AM – 9:30 AM ET

• Presenter: Richard R. Sharp, PhD (he/him/his), Program Director and Professor, Mayo Clinic Biomedical Ethics Program, Rochester, Minnesota
• Presenter: Sara Gerke, Dipl-Jur, MA, Penn State University, Dickinson Law School, Carlise, Pennsylvania

Panel Presentation: Research Participation as Labor: Models for Respect, Inclusion, and Compensation - Location: Laurel CD (Fourth Floor)

9:45 AM – 11:00 AM ET

• Moderator: Amelia Hood, MA (she/her/hers), Research Associate, Johns Hopkins Berman Institute of Bioethics, Baltimore, Maryland
• Presenter: Marielle Gross, MD, MBE, University of Pittsburgh Medical Center, Pittsburgh, Pennsylvania
• Presenter: Isaac Chan, MD, PhD, University of Texas Southwestern, Dallas, Texas
• Presenter: Samantha Horn

Panel Presentation: Value or Villain? Balancing Gene Therapy Patient Access and Financial Challenges - Location: Iron (Fourth Floor)

9:45 AM – 11:00 AM ET

• Presenter: Meghan Halley, PHD, MPH, Senior Research Scholar Stanford Center for Biomedical Ethics
• Presenter: Hadley Stevens Smith, PhD, MPSA, Assistant Professor, Department of Population Medicine, Harvard Medical School
• Presenter: Mark Trusheim, MS, Strategic Director, NEWDIGS, Tufts Medical Center
• Presenter: Ryan Fischer, BA, Chief Operating Officer, Foundation for Angelman Syndrome Therapeutics

Paper Presentations: Reckoning with Eugenics and Sterilization Policy - Location: Chasseur (Third Floor)

9:45 AM - 11:00 AM ET

• U.S Eugenics, Reckoning Lessons, and Bioethics, Presenter: Charlene Galarneau, PHD (she/her/hers), Senior Lecturer, Harvard Medical School. Center for Bioethics, Newfane, Vermont

Paper Presentations: Pediatric Research Ethics - Location: Atlantic (Third Floor)

9:45 AM – 11:00 AM ET

• Gene Therapy Trials and Pediatric Assent – Is it Time to Re-Think or Align with Organ Transplant? Presenter: Rafael Escandon, DRPH, PHD, MPH, HEC-C (he/him/his), Principal, DGBI Consulting, LLC.
• Preparing to Parent a Child with a Genetic Condition: Key stakeholders Weigh in on Prenatal Genetic Testing and its Implications, Presenter: Sabina Rubeck, MPH, Research Coordinator, Case Western Reserve University, School of Medicine

Paper Presentations: Community Engagement in Research - Location: Galena (Fourth Floor)

9:45 AM - 11:00 AM ET

• Advancing Equity in Artificial Intelligence-Enabled Mobile Health Tools: A Focus Group Study of Hispanic and Latinx Community Perspectives, Presenter: Stephanie A. Kraft, JD (she/her/hers), Assistant Professor, University of Washington School of Medicine, Seattle, Washington

Panel Presentation: Special Considerations for Investigators and IRBs in Supporting the Inclusion of Underrepresented Populations in Research - Location: Laurel CD (Fourth Floor)

2:30 PM - 3:45 PM ET

• Moderator: Michelle McGowan, Ph.D., Mayo Clinic, Rochester, Minnesota
• Presenter: Jessica Hirsch, MA, D. Bioethics, CIP, Mayo Clinic, Rochester, Minnesota
• Presenter: Karen Meagher, Ph.D. (she/her/hers), Mayo Clinic, Rochester, Minnesota
• Presenter: Megan Allyse, PhD, Mayo Clinic, Rochester, Minnesota

Panel Presentation: Top 10 Legal Developments in Bioethics and Public Health - Location: Harborside Ballroom (Fourth Floor)

2:30 PM - 3:45 PM ET

• Presenter: Arthur R. Derse, MD, JD, Professor and Director, Center for Bioethics and Medical Humanities, Medical College of Wisconsin, Milwaukee, Wisconsin
• Presenter: Paul Lombardo, JD, PhD, Professor, Center for Law Health and Society, Center for Law Health and Society, Atlanta, Georgia
• Presenter: Thaddeus M. Pope, JD, PhD, Professor, Health Law Institute, Mitchell Hamline University School of Law, Saint Paul, Minnesota
• Presenter: Valerie Gutmann Koch, JD, Professor, Health Law & Policy Institute, University of Houston Law Center, Houston, Texas

Flash Presentations: Clinical Ethics - Location: Essex AB (Fourth Floor)

4:00 PM - 5:15 PM ET

• A Tool for Ethical Analysis of Persuasion and Influence in Genetic Counseling Communication, Presenter: Chenery Lowe, PHD (she/her/hers), Assistant Scientist, Johns Hopkins University

Panel Presentation: “Not Parent Expected,” Now What?: Consumer Genetic Testing Experiences, Ethical Challenges, and Opportunities - Location: Laurel AB (Fourth Floor)

4:00 - 5:15 PM ET

• Presenter: Christi Guerrini, JD, MPH, Baylor College of Medicine, Houston, Texas
• Presenter: Olivia Schuman, PhD, HEC-C, University of Louisville and Norton Healthcare, Louisville, Kentucky
• Presenter: Michele Grethel, PhD, LCSW, University of Southern California Suzanne Dworak-Peck School of Social Work, New York, New York
• Presenter: Brianne Kirkpatrick, MS, LCGC, Medical Communications Manager; Consultant, 23andMe; Watershed DNA, Crozet, Virginia

Panel Presentation: Behavioral and Cognitive Research in Diverse Populations: Experiences of the All of Us Research Program Integrating Ethical, Legal and Social Implications (ELSI) in Research Design and Implementation - Location: Dover AB (Third Floor)

4:00 - 5:15 PM ET

• Moderator: Heather Sansbury, PhD, Senior Biomedical Scientist, National Institutes of Health, All of Us Research Program, Bethesda, Maryland
• Presenter: Subhashini Chandrasekharan, PHD, Ethical. Legal and Social Implications Lead, National Institutes of Health, All of Us Research Program, Bethesda, Maryland
• Presenter: Cecelia Tamburro, B.A. (she/her/hers), Medical Student, Yale School of Medicine, Bethesda, Maryland
• Presenter: Karl D. Cooper, JD (he/him/his), Executive Director, American Association on Health & Disability, Rockville, Maryland

Paper Presentations: AI in Practice - Location: Falkland (Fourth Floor)

4:00 PM - 5:15 PM ET

Paper Presentations: Ethics of Emerging Technologies  - Location: Dover C (Third Floor)

4:00 PM - 5:15 PM ET

• Health Equity and the Prevalence Principle in Human Genome Editing, Presenter: Douglas Mackay, PhD, University of North Carolina at Chapel Hill

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Friday, October 13th, 2023

Panel Presentation: Unzipping Ethical Dilemmas regarding Parental Authority in Prenatal Gene Therapy - Location: Kent A-C (Fourth Floor)

8:00 AM – 9:15 AM ET

• Moderator: Jeremy Garrett, PhD (he/him/his), Professor of Pediatrics & Adjunct Professor of Philosophy, University of Missouri-Kansas City, Kansas City, Missouri
• Presenter: Ana Maria Dumitru, MD, PhD, Postdoctoral Research Fellow, Children's Hospital of Philadelphia, Philadelphia, Pennsylvania
• Presenter: Rafael Escandon, DRPH, PHD, MPH, HEC-C (he/him/his), Principal, DGBI Consulting, LLC, Bainbridge Island, Washington
• Presenter: Meghan E. Strenk, MS, CGC, Genetic Counselor, Children's Mercy Kansas City, Kansas City, Missouri

Paper Presentations: Data Sharing and Participation - Location: Galena (Fourth Floor)

8:00 AM – 9:15 AM ET

• Barriers and Facilitators to Genomic Data Sharing: Ongoing Tensions Between Federal Expectations and Researcher Practice, Presenter: Kayte Spector-Bagdady, JD, MA, HEC-C (she/her/hers),Co-Director, University of Michigan Medical School
• Examining Federally Qualified Health Center Patient-Participant Motivations in the All of Us Research Program, Presenter: Danielle M. Pacia, Master of Bioethics (she/her/hers), Research Associate, The Hastings Center
• Exchanging Words: Engaging the Ethical and Practical Challenges of Sharing Qualitative Research Data, Presenter: James M. DuBois, DSc, PhD, Director and Bander Professor of Medical Ethics, Washington University in St. Louis, Saint Louis, Missouri

Paper Presentations: International Approaches to Stakeholder Research - Location: Essex C (Fourth Floor)

8:00 AM – 9:15 AM ET

• Into Routine Practice?: Insights from Botswana TB Stakeholders on the Ethics of Hypothetically Scaling Up Whole Genome Sequencing into Botswana’s TB Program, Presenter: Stephen Molldrem, PhD (he/him/his), Assistant Professor, The University of Texas Medical Branch

Flash Presentations: Policy and Law - Location: Essex AB (Fourth Floor)

9:30 AM - 10:45 AM ET

• Health Professionals’ Beliefs in Genetic Determinism and Their Perspectives on the Ethics of Using COVID-19 Host Genomic Information for Decision-Making During the Pandemic, Presenter: Sheethal Jose, BA, BS (she/her/hers), PhD Candidate, Johns Hopkins University
• Public Perceptions on Law Enforcement Use of Investigative Genetic Genealogy (IGG): Results from a Choice Experiment, Presenter: Whitney Bash Brooks, MPH (she/her/hers), Baylor College of Medicine

Paper Presentations: Towards Equitable and Just Applications of AI/ML in Healthcare - Location: Iron (Fourth Floor)

9:30 AM - 10:45 AM ET

• Building Equitable and Effective Systems of Maintenance and Repair for Health AI, Presenter: Kellie Owens, PhD (she/her/hers), Assistant Professor, NYU Grossman School of Medicine, Philadelphia, Pennsylvania

Paper Presentations: Interprofessional Education - Location: Chasseur (Third Floor)

9:30 AM - 10:45 AM ET

• Geneticization of Education: On Consumer Interpretation of DTC Genetic Reports for Educational Outcomes, Presenter: Lucas J. Matthews, PhD, Columbia University

Panel Presentation: Heuristics and Bias in Health Care Decision Making: Identifying Problems and Advancing Solutions - Location: Essex AB (Fourth Floor)

3:15 PM – 4:30 PM ET

• Moderator: Dana Ribeiro Miller, M.Div., L.C.S.W., APSHW-C (she/her/hers), Palliative Social Worker | Clinical Instructor Medicine, NYU Grossman Long Island School of Medicine, Mineola, New York
• Presenter: Jeffrey Berger, MD (he/him/his), NYU-Long Island School of Medicine, Mineola, New York
• Presenter: Jennifer Blumenthal-Barby, PhD, MA (she/her/hers), Cullen Professor of Medical Ethics & Associate Director, Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston TX, Texas
• Presenter: Peter Reese, MD, PhD, Professor of Medicine and Epidemiology, University of Pennsylvania, Philadelphia, Pennsylvania

Panel Presentation: Leveraging Voice as a Biomarker: Ethical and Legal Considerations in Developing Trustworthy Voice AI Technology - Location: Waterview AB (Lobby Level)

3:15 PM – 4:30 PM ET

• Presenter: Hortense Gallois, M.A., M.L. (she/her/hers), Doctoral student, Université de Montréal, School of Public Health, Montreal, Quebec
• Presenter: Ruth Bahr, PhD, University of South Florida, Department of Communication Sciences & Disorders, College of Behavioral and Community Sciences, Tampa, Florida
• Presenter: Gavin Victor, BA
• Presenter: Simon Fraser University, Faculty of Arts, Burnaby, British Columbia
• Presenter: Alexander Bernier, J.D., LL.M., University of Toronto, Faculty of Law, Toronto, Ontario

Paper Presentations: Artificial Intelligence and Research - Location: Falkland (Fourth Floor)

3:15 PM – 4:30 PM ET

Paper Presentations: Evaluating the Acceptability of AI - Location: Dover C (Third Floor)

3:15 PM – 4:30 PM ET

Panel Presentation: Moving from Disability Rights to Disability Justice: The Role of Bioethics in Imagining a More Inclusive and Accessible Future - Location: Harborside Ballroom (Fourth Floor) 

5:00 PM - 6:15 PM ET

• Presenter: Kevin T. Mintz, PHD (he/him/his), Postdoctoral Fellow in ELSI Research, Stanford University, Palo Alto, California
• Presenter: Kara Ayers, PhD (she/her/hers), Associate Director; Associate Professor, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio
• Presenter: Natalie Hardy, PhD(c) (she/her/hers), Health Care Ethics PhD candidate, Albert Gnaegi Center for Health Care Ethics, Saint Louis University, St. Louis, Missouri

Paper Presentations: Novel Technologies - Location: Iron (Fourth Floor) 

5:00 PM - 6:15 PM ET

• Addressing Regulatory Gaps and Uncertainties for New and Emerging Biotechnologies: The Case of Organoids, Jonathan Lewis, PHD, MA, MA (Cantab) (he/him/his), Research Fellow in Bioethics and Medical Law, The University of Manchester Manchester, England

Panel Presentation: Deliberating Genomic Research: Ethical Engagement and Research with Indigenous Communities - Location: Dover AB (Third Floor)

6:00 PM - 7:15 PM ET

• Presenter: Jessica Blanchard, PHD, MA, University of Oklahoma, Norman, Oklahoma
• Presenter: Julie Beans, MPH, Researcher, Southcentral Foundation
• Presenter: Joseph Yracheta, MS (he/him/his), Executive Director, Native Bio-Data Consortium
• Presenter: Christie Byars-Chavez, M-POWER Coordinator, Chickasaw Nation

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Saturday, October 14th, 2023

Flash Presentations: Diverse Lenses - Location: Laurel CD (Fourth Floor)

7:30 AM – 8:45 AM ET

• Navigating the Bioethical Crossroads of Cancer Genetic Testing in Low-Resource Regions in Africa – What Do We Need to Consider?, Presenter: Lynn W. Bush, PhD, MA, MA (she/her/hers), Faculty, Bioethicist-Developmental Scientist, Boston Children's Hospital and Harvard Medical School

Panel Presentation: Encoding Patient Values into Artificial Intelligence Clinical Decision Support Systems: The Perfect Proxy, The Ideal Shared Decision Maker, or The Paternalistic Machine - Location: Harborside Ballroom (Fourth Floor)

7:30 AM – 8:45 AM ET

• Moderator: Pierre L. Ibraheem, BS, Medical Student, Hackensack Meridian School of Medicine, Bayonne, New Jersey
• Presenter: Charles Binkley, MD, FACS, HEC-C, Director of Bioethics, Hackensack Meridian Health, Edison, New Jersey
• Presenter: Bryan Pilkington, PhD, Professor of Medical Sciences, Hackensack Meridian School of Medicine, Nutley, New Jersey
• Presenter: Christian Vercler, MD, MA, University of Michigan Medical School, Ann Arbor, Michigan

Paper Presentations: Genome Editing - Location: Dover C (Third Floor)

7:30 AM – 8:45 AM ET

• The Public-Private Research Ecosystem in the Era of Genome Editing: Learning from the Past to Shape Future Governance, Presenter: John M. Conley, JD, PhD (he/him/his), Professor, University of North Carolina
• Toward Meaningful Distinctions Between Treatment, Prevention, and Enhancement in Human Genome Editing, Presenter: R. Jean Cadigan, PhD, University of North Carolina-Chapel Hill School of Medicine

Panel Presentation: Ethical Dimensions of Xenotransplantation Experimentation with Humans - Location: Essex AB (Fourth Floor)

9:00 AM - 10:15 AM ET

• Presenter: L .Syd M. Johnson, PhD, HEC-C (she/her/hers), Associate Professor, Upstate Medical University, Syracuse, New York
• Presenter: Carrie Thiessen, MD, PhD, Assistant Professor, UW Madison, Madison, Wisconsin
• Presenter: Abbie Leino, MS, PharmD (she/her/hers), PhD Candidate & Clinical Pharmacist, University of Michigan, Ann Arbor, Michigan
• Presenter: Deborah Levine, MD, Stanford University, Palo Alto, California

Paper Presentations: Health Data Privacy - Location: Essex C (Fourth Floor)

9:00 AM - 10:15 AM ET

• Privacy’s Empty Promises: Comparing Health App Privacy Policies and Advertisements and Data Sharing Practices, Presenter: Leah R. Fowler, JD, MPH (she/her/hers), Research Assistant Professor, University of Houston Law Center, Houston, Texas

Panel Presentation: Ethical Considerations for Implementation Strategies of AI in Healthcare - Location: Kent A-C (Fourth Floor)

10:30 AM - 11:45 AM ET

• Presenter: Faith Summersett Williams, PhD (she/her/hers), Assistant Professor of Research, Northwestern University Feinberg School of Medicine, Chicago, Illinois
• Presenter: Kelly Michelson, MD, MPH, HEC-C (she/her/hers), Professor/Attending Physician, Northwestern University/Lurie Children's Hospital, Chicago, Illinois
• Presenter: Juan C. Rojas, MD, MS, Assistant Professor, Rush University, Chicago, Illinois

Panel Presentation: About Us and With Us: Including Deaf Perspectives in Genomics and Genetics Stakeholder Discussions - Location: Waterview AB (Lobby Level)

1:15 PM - 2:30 PM ET

• Moderator: Teresa Blankmeyer Burke, PhD, Gallaudet University
• Presenter: Brian H. Greenwald, PhD, Gallaudet University
• Presenter: Tawny Holmes Hlibok, MA, JD, Gallaudet University
• Presenter: Derek C. Braun, PhD (he/him/his), Gallaudet University