ELSI Presentations at ASBH 2024

The following is a list of ELSI and ELSI-related sessions at ASBH 2024. Please email us at [email protected] if you would like to add your presentation.

Thursday, September 19, 2024

9:15 AM – 10:15 AM CT - Paper Session — Equity Issues in Genetics
10:45 AM – 11:45 AM CT -  Paper Session — ELSI Session: Law, Public Health Policy, Organizational Ethics
10:45 AM – 11:45 AM CT - Paper Session  — Addressing Race as a Category in Medicine
3:00 PM – 4:00 PM CT - Panel — Mapping Genetic Frontiers: Seeking Translational Justice in Prenatal Gene Editing

Presenters:

  • Megan Allyse, PhD – Mayo Clinic
  • Marsha Michie, PhD – Case Western Reserve University
  • Rosario Isasi, JD, MPH – Hussman Institute for Human Genomics
4:30 PM – 5:30 PM CT - Panel — Engage Communities, but How? A Guide to Card-Sort Methods for Directing ELSI Research

Presenters:

  • Sara Watson, MA – Mayo Clinic
  • Jean Cadigan, PhD (she/her/hers) – University of North Carolina at Chapel Hill
  • Shawneequa Callier, JD, MA – The George Washington University School of Medicine
  • Karen Meagher, PhD (she/her/hers) – Mayo Clinic
5:45 PM – 6:45 PM CT - ELSI Affinity Group Meeting

Presenters:

  • Daphne O. Martschenko, PhD – Stanford Center for Biomedical Ethics
  • Elise Li Zheng, PhD
  • Chenery Lowe, PHD (she/her/hers) – Stanford Center for Biomedical Ethics
  • Jonathan LoTempio, PhD
  • Aaron Goldenberg, PHD,MPH ((he/him/his)) – Case Western Reserve University
  • Maya Sabatello, LLB, PhD (she/her/hers) – Columbia University

Friday, September 20, 2024

8:45 AM – 9:45 AM CT - Flash Presentation — An Important Seat at the Table: The Unique Role of the Genetic Counselor in Health Care Ethics Consultation, Committee Work, and Ethics Education
  • Presenter: Margaret Menzel, MS, CGC, HEC-C
10:15 AM – 11:15 AM CT - Panel — Exceptional Injustice: Interrogating Public Comments on Migrant DNA Collection at the Border

Presenters:

  • Moderator: Rachel Fabi, PhD, HEC-C (she/her/hers) – SUNY Upstate Medical University
  • Elizabeth Dietz, PhD (they/them/theirs) – National Institutes of Health
  • Leila Jamal, ScM, PhD, LGC (she/her/hers) – National Cancer Institute
10:15 AM – 11:15 AM CT - Paper — Are IRBs Prepared to Govern Reprogenomics Research?
  • Presenter: Harlie Dion Custer (she/her/hers) – Case Western Reserve University

Saturday, September 21, 2024

8:45 AM – 9:45 AM CT - Paper — The Materialized Oppression of Precision Medicine
  • Presenter: Stephanie M. Fullerton, DPhil (she/her/hers) – University of Washington School of Medicine
10:15 AM – 11:15 AM CT - Paper — Attitudes Toward Medical Research Among Adolescent Patients and Parents of Children with Sickle Cell Disease
  • Presenter: Liza-Marie Johnson, MD, MPH, MSB, HEC-C (she/her/hers) – St. Jude Children's Research Hospital
11:30 AM – 12:30 PM CT - Panel: Equity and Engagement Through Innovative Research Frameworks: Results from Human Genomic Studies

Presenters:

  • Caitlin E. McMahon, PhD – Columbia University
  • Maya Sabatello, LLB, PhD (she/her/hers) – Columbia University
  • Jenny Reardon, PhD – University of California, Santa Cruz
    Moderator: Shawneequa Callier, JD, MA – The George Washington University School of Medicine


 

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