ELSI in Review • August 2024

About this listing

ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our August 2024 set explores features of genetic data that contribute to privacy vulnerabilities, societal attitudes towards genetically modified crops, and more. If you would like your ELSI-relevant review featured in this communication, please contact us at [email protected]. You can find more reviews in the ELSIhub Publications database!

Policy

• Parthasarathy, S. (2024). The politics of expertise in genomics policy and law. Annual Review of Law and Social Science. Advance online publication.
• Ng, Q. X., Ong, C., Chan, K. E., Ong, T. S. K., Lim, I. J. X., Tang, A. S. P., Chan, H. W., & Koh, G. C. H. (2024). Comparative policy analysis of national rare disease funding policies in Australia, Singapore, South Korea, the United Kingdom and the United States: A scoping review. Health Economics Review, 14(1), 42.
• van der Geest, M. A., Maeckelberghe, E. L. M., van Gijn, M. E., Lucassen, A. M., Swertz, M. A., van Langen, I. M., & Plantinga, M. (2024). Systematic reanalysis of genomic data by diagnostic laboratories: A scoping review of ethical, economic, legal and (psycho)social implications. European Journal of Human Genetics, 32(5), 489–497.

Education

• Morris, T. T., von Hinke, S., Pike, L., Ingram, N. R., Davey Smith, G., Munafò, M. R., & Davies, N. M. (2024). Implications of the genomic revolution for education research and policy. British Educational Research Journal, 50(3), 923–943.
• Nisselle, A., Terrill, B., Janinski, M., Metcalfe, S., & Gaff, C. (2024). Ensuring best practice in genomics education: A scoping review of genomics education needs assessments and evaluations. The American Journal of Human Genetics. Advance online publication.

Data Privacy and AI

• Thomas, M., Mackes, N., Preuss-Dodhy, A., Wieland, T., & Bundschus, M. (2024). Assessing privacy vulnerabilities in genetic data sets: Scoping review. JMIR Bioinformatics and Biotechnology, 5(1), Article e54332.
• Williamson, S. M., & Prybutok, V. (2024). Balancing privacy and progress: A review of privacy challenges, systemic oversight, and patient perceptions in AI-driven healthcare. Applied Sciences, 14(2), Article 2.

Global Genomics

• Owolabi, P., Adam, Y., & Adebiyi, E. (2023). Personalizing medicine in Africa: Current state, progress and challenges. Frontiers in Genetics, 14.
• Pinto, D., de Jong, M. C., & Parameswaran, R. (2024). Challenges in genetic screening for inherited endocrinopathy affecting the thyroid, parathyroid and adrenal glands in Singapore. Annals, 53(4), 253–263.

GM Foods

• Medani, K. R., Neill, A., Garrod, G., Ojo, M., & Hubbard, C. (2024). Societal perceptions and attitudes towards genetically modified (GM) crops, feed, and food products in the Middle East, North Africa, and Turkey (MENAT) region: A systematic literature review. Food Quality and Preference, 117, Article 105148.
• Ledesma, A. V., & Van Eenennaam, A. L. (2024). Global status of gene edited animals for agricultural applications. The Veterinary Journal, 305, Article 106142.
• Paleologo, M., Lanubile, A., Camardo Leggieri, M., Graffigna, G., Gomarasca, P., & Barello, S. (2024). Public perception of new plant breeding techniques and the psychosocial determinants of acceptance: A systematic review. Public Understanding of Science. Advance online publication.