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ELSI in Review • May 2025
About this listing
ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our May 2025 set explores ethical considerations in psychiatric genomics, anticipatory governance for genetic engineering of organs, and more. If you would like your ELSI-relevant review featured in this communication, please contact us at [email protected]. You can find more reviews in the ELSIhub Publications database!
Clinical Genetics
- Bonini, K. E., Smith, H. S., Bonkowski, E. S., Berkman, B. E., & Jamal, L. (2025). Modern family: An ethical justification for system-led contact of relatives eligible for cascade screening in the United States. Public Health Genomics, 28(1), 19–33.
- Houtz, C., & Mueller, R. (2025). Disability, genetic counseling, and medical education: From eugenics to anti-ableism. Annual Review of Genomics and Human Genetics. Advance online publication.
- Kengne Kamga, K., Marlyse, P. F., Nguefack, S., & Wonkam, A. (2025). Advancing genetic services in African healthcare: Challenges, opportunities, and strategic insights from a scoping review. HGG Advances. Advance online publication.
- Lenin, C., Lim, P. X. H., Nastar, A., Subramaniam, T., Pek, S., Daccord, M., Evans, E., Print, E., Chan, F. H. F., & Griva, K. (2025). Facilitators and barriers to uptake of genetic and cascade testing in familial hypercholesterolemia: A systematic review. International Journal of Behavioral Medicine. Advance online publication.
- Ng, Q. X., Tang, A. S. P., Chan, K. E., Chan, H. W., Howard, N., & Koh, G. C. H. (2025). Lived experiences of patients, families and caregivers affected by inherited retinal diseases: A qualitative systematic review. Disability and Health Journal. Advance online publication.
- Rodrigues, P. F., Freitas Filho, E. de O., Carvalho, L. V. de, Brito, D. P. de, & Faustino, L. R. (2025). Ethical aspects of preimplantation genetic diagnoses and Brazilian law. Revista Bioética, 33, Article e3731PT.
- Warton, C., & Vears, D. F. (2025). Healthcare professionals’ perspectives on and experiences with non-invasive prenatal testing: A systematic review. Human Genetics, 144(4), 343–374.
Genomic Diversity
- Dada, O. E., Chisango, Z., Nkansah-Poku, K. A. B., Sowah, M. N., Rodrigues, A. C. L. F., Duru, O., Myers, M., Williams, S. T., Ushewokunze, S., Collis, S. J., Shlobin, N. A., Omoruyi, S., & Rominiyi, O. (2025). Race and “omic” data in glioma: A systematic review of contemporary research to explore the digital divide. Neuro-Oncology Practice. Advance online publication.
- Kolopenuk, J. (2025). Rethinking the genomic diversity problem: Rejecting inclusion in defense of Indigenous sovereignty. Annual Review of Genomics and Human Genetics. Advance online publication.
Genomic Data
- Kreutzer, T., Orbinski, J., Appel, L., An, A., Marston, J., Boone, E., & Vinck, P. (2025). Ethical implications related to processing of personal data and artificial intelligence in humanitarian crises: A scoping review. BMC Medical Ethics, 26(1), 49.
- Liu, H., Liu, Y., Zhao, Y., Ma, Y., Chen, Q., Xu, H., Wang, X., Guo, X., Wang, H., Chen, Z., Zhang, S., & Han, B. (2025). A scoping review of human genetic resources management policies and databases in high- and middle-low-income countries. BMC Medical Ethics, 26(1), Article 37.
Research
- Kurtoğlu, A., Yıldız, A., & Arda, B. (2024). The view of synthetic biology in the field of ethics: A thematic systematic review. Frontiers in Bioengineering and Biotechnology, 12, Article 1397796.
- Martschenko, D. O., Lee, S. S.-J., Meyer, M. N., & Parens, E. (2025). Social and behavioral genomics: On the ethics of the research and its downstream applications. Annual Review of Genomics and Human Genetics. Advance online publication.
- Noë, A., Vaillancourt, E., & Zawati, M. H. (2025). Verbal consent in biomedical research: Moving toward a future standard practice? Frontiers in Genetics, 16, Article 1472655.
- Reiterdank, I. F. von, Bento, R., Hyun, I., Isasi, R., Wolf, S. M., Coert, J. H., Molen, A. B. M. van der, Parekkadan, B., & Uygun, K. (2025). Designer organs: Ethical genetic modifications in the era of machine perfusion. Annual Review of Biomedical Engineering. Advance online publication.
- Stein, D. J., & Hartford, A. (2025). Ethical considerations in psychiatric genomics. Psychiatric Clinics of North America. Advance online publication.
