ELSI in Review • November 2024

About this listing

ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our November 2024 set explores the utility of obesity polygenic risk scores, ethics of ChatGPT use in healthcare, ELSI of gamete donation, and more. If you would like your ELSI-relevant review featured in this communication, please contact us at [email protected]. You can find more reviews in the ELSIhub Publications database!

Clinical Genetics

• Droin-Mollard, M., Hervouet, L., Lahlou-Laforêt, K., & de Montgolfier, S. (2024). Narrative review on ethical and psychological issues raised by genetic and genomic testing in pediatric oncology care. Journal of Genetic Counseling. Advance online publication.
• Jansen, P. R., Vos, N., van Uhm, J., Dekkers, I. A., van der Meer, R., Mannens, M. M. A. M., & van Haelst, M. M. (2024). The utility of obesity polygenic risk scores from research to clinical practice: A review. Obesity Reviews, 25(11), Article e13810.
• Limoges, J., Chiu, P., Dordunoo, D., Puddester, R., Pike, A., Wonsiak, T., Zakher, B., Carlsson, L., & Mussell, J. K. (2024). Nursing strategies to address health disparities in genomics-informed care: A scoping review. JBI Evidence Synthesis. Advance online publication.
• McLaughlin, L., Mahon, S. M., & Khemthong, U. (2024). A systematic review of genomic education for nurses and nursing students: Are they sufficient in the era of precision health? Nursing Outlook, 72(5), Article 102266.

Public Engagement

• Kreeftenberg, L. L., Henneman, L., Ket, J. C. F., Cornel, M. C., & van El, C. G. (2024). Engagement of patients and the public in personalised prevention in Europe using genomic information: A scoping review. Frontiers in Public Health, 12, Article 1456853.
• Ha, E. K., Shriner, D., Callier, S. L., Riley, L., Adeyemo, A. A., Rotimi, C. N., & Bentley, A. R. (2024). Native Hawaiian and Pacific Islander populations in genomic research. Npj Genomic Medicine, 9(1), Article 45.
• Reforma, L., Greenberg, S., Ledyard, R., Burris, H., Reforma, L., Greenberg, S. E., Ledyard, R., & Burris, H. H. (2024). Equitable representation of race, ethnicity, and ancestry among genomic studies of preterm birth: A systematic review. Cureus,16(2), Article e53757.
• Morris, H. N., Winslow, A. T., Barreiro-Rosado, J. A., Torian, S., & Charlot, M. (2024). Scoping review of barriers and facilitators to recruitment of Black people with cancer in biospecimen-based research. JCO Precision Oncology, 8, Article e2300708.

Reproductive Medicine

• Alon, I., Cassou, M., Golan, O. C., & Ravitsky, V. (2024). Mapping ethical, legal, and social implications (ELSI) of gamete donation. Journal of Assisted Reproduction and Genetics. Advance online publication.
• Kleiderman, E., Boardman, F., Newson, A. J., Laberge, A.-M., Knoppers, B. M., & Ravitsky, V. (2024). Unpacking the notion of “serious” genetic conditions: Towards implementation in reproductive decision-making? European Journal of Human Genetics. Advance online publication.
• Alon, I., Bussod, I., Golan, O. C., & Ravitsky, V. (2024). Mapping ethical, legal, and social implications (ELSI) of fertility preservation. Journal of Assisted Reproduction and Genetics, 41(9), 2495–2514.

Artificial Intelligence

• Haltaufderheide, J., & Ranisch, R. (2024). The ethics of ChatGPT in medicine and healthcare: A systematic review on large language models (LLMs). Npj Digital Medicine, 7(1), Article 183.
• Akingbola, A., Adegbesan, A., Ojo, O., Otumara, J. U., & Alao, U. H. (2024). Artificial intelligence and cancer care in Africa. Journal of Medicine, Surgery, and Public Health, 3, Article 100132.
• Allen, B. (2024). The promise of explainable AI in digital health for precision medicine: A systematic review. Journal of Personalized Medicine, 14(3), Article 3.
• Inglada Galiana, L., Corral Gudino, L., & Miramontes González, P. (2024). Ethics and artificial intelligence. Revista Clínica Española, 224(3), 178–186.
• Zaidan, E., & Ibrahim, I. A. (2024). AI governance in a complex and rapidly changing regulatory landscape: A global perspective. Humanities and Social Sciences Communications, 11(1), Article 1121.