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Just Funded

Our Just Funded feature is a listing of ELSI grants that were recently awarded by the National Human Genome Research Institute (NHGRI). If we missed your grant, please email us at [email protected].

Last updated: February 21, 2024

Project Principal Investigator(s) Award Notice Date
A multi-stakeholder approach to the ELSI of social and behavioral genomics: Investigating the field's downstream implications to mitigate harms, promote benefits, and locate social responsibility

Daphne Oluwaseun Martschenko

February 6, 2024
Trans/forming genomics: Guidance for research involving transgender and gender diverse people

Carol R. Horowitz

Kellan Enstad Baker

Sari Reisner

September 20, 2023
Genetic attributions and racialized perceptions of obesity

Matthew Lebowitz

Rebecca L. Pearl

Carolyn M. Tucker

September 20, 2023
Community Engagement Core Kevin Darryl Cassel September 15, 2023
Exploring parental perspectives on pediatric genome testing, research, and data management in a multicultural population Sabrina Derrington September 11, 2023
Implementation of an impact assessment tool to optimize responsible stewardship of genomic data in the cloud Vasiliki Rahimzadeh September 1, 2023
Identifying strategies to reveal genetic results over the lifespan Anna Lewis August 22, 2023
Just inclusion and equity: Negotiating community-research partnerships in genomics research (JUSTICE)

Sandra Soo-Jin Lee

Shawneequa Callier

Janet K. Shim

August 18, 2023
Managing the uncertainty of genetic information in neonates Katharine Press Callahan July 14, 2023
iDash genome privacy and security competition workshop

Tsung-Ting Kuo

Xiaoqian Jiang

Haixu Tang

February 16, 2023
Diversity in practice: The quest for inclusion in precision medicine

Sandra Soo-Jin Lee

Janet K. Shim

December 28, 2022

Religion and support for genomic healthcare: An exploratory study of the US public and faith leaders

James M. Dubois

September 22, 2022

How does genetic ancestry testing affect perceptions of race?

Wendy D. Roth

Ariela Schachter

September 21, 2022
NARCH12 Sohail Imran Khan September 20, 2022
Building tribal capacity through informing the development of tribal research codes to govern genomic research: A collaboration between Cherokee Nation and the University of Oklahoma Jessica Blanchard

September 20, 2022

Improving care for rare genetic diseases: Patient-provider communication and patient validation in the Ehlers-Danlos Syndromes

Colin Michael Egenberger Halverson

September 19, 2022

RESCUE: Rare disease detection and escalation support via a learning health system

Cong Liu

September 19, 2022

Advancing equitable implementation of genomic medicine in nephrology

Hila Milo Rasouly

September 9, 2022

Investigating ELSI issues that may facilitate or impede clinical translation of epigenomic research

Erika A. Waters

September 6, 2022

Providing ethical guidance for the development of individualized genomic medicine as rare as n-of-1

Timothy Wei-Wen Yu

Lynn Bush

Ingrid Adele Holm

August 29, 2022

GREAT Opportunities in Genomic Science

Nathaniel Jue

Shahidul Islam

August 26, 2022

Evaluating community perceptions and ethical considerations in genetics research in small scale populations

Anne C. Stone

August 15, 2022

Piloting a standardized psychosocial assessment tool (BATHE) in genetic counseling

Maryann W. Campion

August 12, 2022

Hospitals sharing patient data and biospecimens with commercial entities: Evidence-based translation to improved practice

Kayte Kelleher Spector-Bagdady

July 18, 2022

Including adults with intellectual disability in precision medicine research - Project ENGAGE

Katherine Elizabeth McDonald

Maya Sabatello

July 15, 2022

Investigating Latinx populations’ attitudes, perceptions, and use of genomic testing

Daniel Chavez-Yenter

July 13, 2022

A FAIR Bridge2AI Center (FABRIC)

Lucila Ohno-Machado

July 8, 2022

The emergence of prenatal gene therapy: An “embedded ethics” ethnography investigating clinical, scientific and societal values

Julia E.H. Brown

July 8, 2022

Understanding disparities in genomic medicine

Monica Hsiung Wojcik

Anne O'Donnell-Luria

July 1, 2022

Beyond the medical: The ELSI of polygenic scores for social traits

Rosemary Jean Cadigan

Anya E.R. Prince

June 13, 2022

NHGRI Research Training and Career Development Annual Meeting

Suzanne B. Haga

March 3, 2022

Genetic data partnerships: Enabling equitable access within academic/private data sharing agreements

Kayte Kelleher Spector-Bagdady

January 25, 2022

A sociotechnical approach to improving security and privacy in the genomic data ecosystem

Carl A. Gunter

January 14, 2022

 

 

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