| Project |
Principal Investigator(s) |
Award Notice Date |
| You gave consent but do I have permission? |
Michelle McGowan |
September 23, 2024 |
| The Moana Project: The connection between Pacific Islanders and genetics |
Stacey Knight |
September 23, 2024 |
| Gene selection for newborn sequencing studies |
Holly Landrum Peay |
September 19, 2024 |
| Supporting pregnant patients as they face a changing landscape of prenatal genetic tests and post-diagnosis options |
Ruth Farrell |
September 18, 2024 |
| Supporting just-in-time consent for prenatal screening in diverse populations |
Megan A. Allyse
Marsha Michie
|
September 18, 2024 |
| Fairness in practice: Defining and implementing diversity & representation in AI datasets for healthcare |
Nicole A. Martinez-Martin
Mildred K. Cho
|
August 30, 2024 |
| Developing strategies for using DNA data to assist family reunifications across child development stages |
Elizabeth Barnert |
August 16, 2024 |
| Promoting access to payment pathways for emerging molecular diagnostics |
Emily Hammad Mrig |
August 7, 2024 |
| From research to clinic: Addressing ethical and policy challenges facing the gene therapy ecosystem |
Karen J. Maschke
Michael K. Gusmano
Jennifer B. McCormick
|
August 1, 2024 |
| Understanding barriers and facilitators to pharmacogenomic testing in chronic pain care |
Katherine M. Hendy |
July 29, 2024 |
| A multi-stakeholder approach to the ELSI of social and behavioral genomics: Investigating the field's downstream implications to mitigate harms, promote benefits, and locate social responsibility |
Daphne Oluwaseun Martschenko
|
February 6, 2024 |
| Trans/forming genomics: Guidance for research involving transgender and gender diverse people |
Carol R. Horowitz
Kellan Enstad Baker
Sari Reisner
|
September 20, 2023 |
| Genetic attributions and racialized perceptions of obesity |
Matthew Lebowitz
Rebecca L. Pearl
Carolyn M. Tucker
|
September 20, 2023 |
| Community Engagement Core |
Kevin Darryl Cassel |
September 15, 2023 |
| Exploring parental perspectives on pediatric genome testing, research, and data management in a multicultural population |
Sabrina Derrington |
September 11, 2023 |
| Implementation of an impact assessment tool to optimize responsible stewardship of genomic data in the cloud |
Vasiliki Rahimzadeh |
September 1, 2023 |
| Identifying strategies to reveal genetic results over the lifespan |
Anna Lewis |
August 22, 2023 |
| Just inclusion and equity: Negotiating community-research partnerships in genomics research (JUSTICE) |
Sandra Soo-Jin Lee
Shawneequa Callier
Janet K. Shim
|
August 18, 2023 |
| Managing the uncertainty of genetic information in neonates |
Katharine Press Callahan |
July 14, 2023 |
| iDash genome privacy and security competition workshop |
Tsung-Ting Kuo
Xiaoqian Jiang
Haixu Tang
|
February 16, 2023 |
| Diversity in practice: The quest for inclusion in precision medicine |
Sandra Soo-Jin Lee
Janet K. Shim
|
December 28, 2022 |
|
Religion and support for genomic healthcare: An exploratory study of the US public and faith leaders
|
James M. Dubois
|
September 22, 2022
|
| How does genetic ancestry testing affect perceptions of race? |
Wendy D. Roth
Ariela Schachter
|
September 21, 2022 |
| NARCH12 |
Sohail Imran Khan |
September 20, 2022 |
| Building tribal capacity through informing the development of tribal research codes to govern genomic research: A collaboration between Cherokee Nation and the University of Oklahoma |
Jessica Blanchard |
September 20, 2022
|
|
Improving care for rare genetic diseases: Patient-provider communication and patient validation in the Ehlers-Danlos Syndromes
|
Colin Michael Egenberger Halverson
|
September 19, 2022
|
|
RESCUE: Rare disease detection and escalation support via a learning health system
|
Cong Liu
|
September 19, 2022
|
|
Advancing equitable implementation of genomic medicine in nephrology
|
Hila Milo Rasouly
|
September 9, 2022
|
|
Investigating ELSI issues that may facilitate or impede clinical translation of epigenomic research
|
Erika A. Waters
|
September 6, 2022
|
|
Providing ethical guidance for the development of individualized genomic medicine as rare as n-of-1
|
Timothy Wei-Wen Yu
Lynn Bush
Ingrid Adele Holm
|
August 29, 2022
|
| GREAT Opportunities in Genomic Science |
Nathaniel Jue
Shahidul Islam
|
August 26, 2022 |
|
Evaluating community perceptions and ethical considerations in genetics research in small scale populations
|
Anne C. Stone
|
August 15, 2022
|
|
Piloting a standardized psychosocial assessment tool (BATHE) in genetic counseling
|
Maryann W. Campion
|
August 12, 2022
|
|
Hospitals sharing patient data and biospecimens with commercial entities: Evidence-based translation to improved practice
|
Kayte Kelleher Spector-Bagdady
|
July 18, 2022
|
|
Including adults with intellectual disability in precision medicine research - Project ENGAGE
|
Katherine Elizabeth McDonald
Maya Sabatello
|
July 15, 2022
|
|
Investigating Latinx populations’ attitudes, perceptions, and use of genomic testing
|
Daniel Chavez-Yenter
|
July 13, 2022
|
|
A FAIR Bridge2AI Center (FABRIC)
|
Lucila Ohno-Machado
|
July 8, 2022
|
|
The emergence of prenatal gene therapy: An “embedded ethics” ethnography investigating clinical, scientific and societal values
|
Julia E.H. Brown
|
July 8, 2022
|
|
Understanding disparities in genomic medicine
|
Monica Hsiung Wojcik
Anne O'Donnell-Luria
|
July 1, 2022
|
|
Beyond the medical: The ELSI of polygenic scores for social traits
|
Rosemary Jean Cadigan
Anya E.R. Prince
|
June 13, 2022
|
|
NHGRI Research Training and Career Development Annual Meeting
|
Suzanne B. Haga
|
March 3, 2022
|
|
Genetic data partnerships: Enabling equitable access within academic/private data sharing agreements
|
Kayte Kelleher Spector-Bagdady
|
January 25, 2022
|
|
A sociotechnical approach to improving security and privacy in the genomic data ecosystem
|
Carl A. Gunter
|
January 14, 2022
|
