Expectation versus reality: The impact of utility on emotional outcomes after returning individualized genetic research results in pediatric rare disease research, a qualitative interview study

Authors:

Cacioppo, C. N.

Chandler, A. E.

Towne, M. C.

Beggs, A. H.

Holm, I. A.

2016

PLoS One

Clinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): R01HG006615, RCHG005491, U01HG006828, U19HD077671