Families' experiences accessing care after genomic sequencing in the pediatric cancer context: “It's just been a big juggle”

Vuocolo and colleagues interviewed patients with cancer predisposition syndrome (CPS) diagnoses and follow up recommendations or their parents to identify barriers and facilitators of access to follow-up care. The authors suggest supports for the pediatric-to-adult transition process, recommendation letters to improve provider knowledge, and other actionable interventions to improve access to genomic services.