Type
Journal Article
Title
Immortal data: A qualitative exploration of patients’ understandings of genomic data
External Link
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Year:
Date
2023
Journal Book Publisher Name
European Journal of Human Genetics
Description
Description
Lyle and colleagues analyze how patients and their relatives conceptualize the “immortality” of genomic data. They find that participants focus on the simplicity of providing a sample instead of the possible findings, consider the implications of their data for family members, and view genomic data as a collective resource that could benefit society.