Parental permission for pilot newborn screening research: Guidelines from the NBSTRN

Authors:

Botkin, J. R.

Lewis, M. H.

Watson, M. S.

Swoboda, K. J.

Anderson, R.

Berry, S. A.

Bonhomme, N.

Brosco, J. P.

Comeau, A. M.

Goldenberg, A.

Goldman, E.

Therrell, B.

Levy-Fisch, J.

Tarini, B.

Wilfond, B.

Bioethics and Legal Work Group of the Newborn Screening Translational Research Network

2014

Pediatrics

Clinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): R01HD069045