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Type
Journal Article
Title

Patient and family social media use surrounding a novel treatment for a rare genetic disease: A qualitative interview study

External Link
View online source

Authors:

Author Name(s)
Alexander A. Iyer
Julie R. Barzilay
Holly K. Tabor

Year:

Date
2020
Journal Book Publisher Name
Genet Med

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ELSIhub is financially supported by the National Human Genome Research Institute at the National Institutes of Health (U24HG010733). It is managed at Stanford and Columbia Universities in partnership with the Hastings Center and Case Western Reserve University.

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