Patient organizations as the (un)usual suspects: The biobanking activities of the Association Française contre les Myopathies and its Généthon DNA and Cell Bank

Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National Human Genome Research Institute||Digital citation migrated from OpenText Livelink Discovery Server database named GenETHX to DSpace collection GenETHX hosted by Georgetown University