Type
Journal Article

Perspectives from a predominantly African American community about biobank research and a biobank consent form

Authors:

Author Name(s)
Laura K. Sedig
E. Hill De Loney
Sarah B. Bailey
Kayte Spector-Bagdady
Bianca Ghita
Lydia Koh Krienke
Raymond Hutchinson

Year:

Date
2022
Journal Book Publisher Name
Ethics & Human Research

Description

Description

Sedig and colleagues identified trust as the most common theme in transcripts of focus group discussions about the consent form for the University of Michigan Medical School Central Biorepository. Participants expressed distrust of medical and research communities, perceived contradictions in the consent materials, stressed the significance of a strong doctor-patient relationship, and emphasized the importance of allowing time to process information.

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