2 Week Follow-Up Personal Genomics (PGen) Study Survey
Year:
Carere and colleagues created the 2 Week Follow-Up Personal Genomics (PGen) Study Survey to measure experiences related to direct-to-consumer personal genomic testing (PGT) approximately 2 weeks after consumers received their results. The baseline survey used in the PGen Study is part of a longitudinal series and the second of three surveys designed to examine experiences with PGT at different points in time (baseline; ~2 weeks after results; ~6 months after results).
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Citation:
Carere, D. A., Couper, M. P., Crawford, S. D., Kalia, S. S., Duggan, J. R., Moreno, T. A., Mountain, J. L., Roberts, J. S., & Green, R. C. (2014). Design, methods, and participant characteristics of the Impact of Personal Genomics (PGen) Study, a prospective cohort study of direct-to-consumer personal genomic testing customers. Genome Medicine, 6(12), 1-11.