Baseline Impact of Personal Genomics (PGen) Study Survey
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Carere and colleagues created the Baseline Impact of Personal Genomics (PGen) Study Survey to collect information about why participants chose to pursue direct-to-consumer personal genomic testing (PGT), their current health status, health conditions of relatives, current health behaviors, and other topics. This baseline survey should be administered after consumers order PGT but before they receive their results. The baseline survey used in the PGen Study is part of a longitudinal series and the first of three surveys designed to examine experiences with PGT at different points in time (baseline; ~2 weeks after results; ~6 months after results).
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Citation:
Carere, D. A., Couper, M. P., Crawford, S. D., Kalia, S. S., Duggan, J. R., Moreno, T. A., Mountain, J. L., Roberts, J. S., & Green, R. C. (2014). Design, methods, and participant characteristics of the Impact of Personal Genomics (PGen) Study, a prospective cohort study of direct-to-consumer personal genomic testing customers. Genome Medicine, 6(12), 1-11.