Document Type
Consent Form
Title

CSER Phase 1: Informed Consent Form and HIPAA Authorization - PediSeq: The Pediatric Genetic Sequencing Project

Author(s):

Author Name(s)
Spinner, Nancy
Krantz, Ian

Year:

Year
2013

The purpose of PediSeq: The Pediatric Genetic Sequencing Project was to identify best practices for educating patients about exome and genome sequencing, determining the sequencing data relevent to patients, and returning results. This informed consent form and HIPAA authorization is appropriate for use with parents of study participants and children capable to providing assent. It contains consent to future analyses of test results, use of data or specimens for future research, future contact, and photgraphs, in addition to consent to study participation.

Research Population:

Research Population
Parents
Children

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