Decision Aid

Optional Results Choice Aid (ORCA)

Author(s):

Freed, Amanda S.

Gruß, Inga

McMullen, Carmit K.

Leo, Michael C.

Kauffman, Tia L.

Porter, Kathryn M.

Muessig, Kristin R.

Eubanks, Donna

Goddard, Katrina A. B.

Wilfond, Benjamin S.

Liles, Elizabeth G.

Year:

2021

The Optional Results Choice Aid (ORCA) is a decision aid to support informed, values based decision-making for adult patients and research participants about the reciept of medically actionable, additional findings from genomic sequencing. ORCA will be implemented and evaluated in the NHGRI-funded Cancer Health Assessment Reaching Many (CHARM) study.

Research Population:

Adults

Citation:

Freed, A. S., Gruß, I., McMullen, C. K., Leo, M. C., Kauffman, T. L., Porter, K. M., Muessig, K. R., Eubanks, D., Goddard, K. A. B., Wilfond, B. S., & Liles, E. G. (2021). A decision aid for additional findings in genomic sequencing: Development and pilot testing. Patient Education and Counseling, 104(5), 960-968.

https://doi.org/10.1016/j.pec.2020.10.038

Contact:

[email protected]

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