Social Policy Options forBiobank Consent
In the linked study, De Vries and colleagues provided participants with a description of a fictional biobank and a description of blanket consent. They measured respondent comprehension of this information using 6 true/false questions and assessed willingness to donate under a blanket consent model. Followng presentation of participants with seven research scenarios that may present moral concerns, they reassessed willingness to donate under blanket consent, "even if" their samples were used for the research described. The authors also presented participants with five consent policies ranging from blanket to study-by-study consent and asked participants to identify whether they foudn these policies acceptable. Please see the Survey Measures section of the linked article for additional details and find the moral concerns scenarios in Table 1 and consent policy in Table 2.
De Vries, R. G., Tomlinson, T., Kim, H. M., Krenz, C., Haggerty, D., Ryan, K. A., & Kim, S. Y. H. (2016). Understanding the public’s reservations about broad consent and study-by-study consent for donations to a biobank: Results of a national survey. PLoS One, 11(7), e0159113.