Vignette for Exploring the Importance of Shared Decision Making about Genomic Research Participation

Bukini and colleagues designed the vignette used in theis study to explore the importance of shared decision making about research participation in Ghana and Cameroon. The vignette, available in the methods section of this study, describes a hypothetical study of children with sickle cell disease. It can be used to examine whether parents would independently decide to enroll their children, or whether they whould or would seek the advice of others, including family members, community elders, etc.