Discover data collection instruments and related materials in the Research Tools database. Please see our FAQ to learn more and email us at [email protected] to contribute your published or unpublished research tools.
61 - 70 of 94 Research Tools
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"What Will You Tell Me?", Video for American Indian and Alaska Native Participants, All of Us Research Program
Year: 2021"What Will You Tell Me?" is a 2 minute 23 second video created by the All of Us Research Program (All of Us) for American Indian and Alaska Native participants.
Research Population: AdultsContact: [email protected] -
"What Will You Tell Me?", Video for American Indian and Alaska Native Participants, All of Us Research Program (Spanish Version)
Year: 2021"What Will You Tell Me?" is a 2 minute 23 second video created by the All of Us Research Program (All of Us) for American Indian and Alaska Native participants.
Research Population: AdultsContact: [email protected] -
"How Could Finding Out My DNA Results Help Me?", Video for American Indian and Alaska Native Participants, All of Us Research Program
Year: 2021"How Could Finding Out My DNA Results Help Me?" is a 54 second video, created by the All of Us Research Program (All of Us) for American Indian and Alaska Native participants, that explai
Research Population: AdultsContact: [email protected] -
"How Could Finding Out My DNA Results Help Me?", Video for American Indian and Alaska Native Participants, All of Us Research Program (Spanish Version)
Year: 2021"How Could Finding Out My DNA Results Help Me?" is a 54 second video, created by the All of Us Research Program (All of Us) for American Indian and Alaska Native participants, that explai
Research Population: AdultsContact: [email protected] -
"What are the Risks?", Video for American Indian and Alaska Native Participants, All of Us Research Program
Year: 2021"What are the Risks?" is a 3 minute video for American Indian and Alaska Native participants of the All of Us Research Program (All of Us) that describes the various risks involved with l
Research Population: AdultsContact: [email protected] -
"What are the Risks?", Video for American Indian and Alaska Native Participants, All of Us Research Program (Spanish Version)
Year: 2021"What are the Risks?" is a 3 minute video for American Indian and Alaska Native participants of the All of Us Research Program (All of Us) that describes the various risks involved with l
Research Population: AdultsContact: [email protected] -
Pediatric BRCA1/2 Testing Attitudes Scale (P-TAS)
Year: 2009Peshkin and colleagues developed and tested the Pediatric BRCA1/2 Testing Attitudes Scale (P-TAS) to assess parental attitudes about and interest in testing their minor children for BRCA 1/2 mutati
Research Population: AdultsValidation(s):- Peshkin, B. N., Demarco, T. A., Garber, J. E., Valdimarsdottir, H. B., Patenaude, A. F., Schneider, K. A., Schwartz, Marc D., & Tercyak, K. P. (2009). Brief assessment of parents' attitudes toward testing minor children for hereditary breast/ovarian cancer genes: Development and validation of the Pediatric BRCA1/2 Testing Attitudes Scale (P-TAS). Journal of Pediatric Psychology, 34(6), 627-638.
Contact: [email protected] -
Feelings About genomiC Testing Results (FACToR) Questionnaire
Year: 2018This post-return of genetic test results survey assesses the psychosocial impact of receiving genomic findings by measuring how much participants had specific feelings such as anxiousness, nervousn
Research Population: AdultsValidation(s):- Li, M., Bennette, C. S., Amendola, L. M., Ragan Hart, M., Heagerty, P., Comstock, B., Tarczy-Hornoch, P., Fullerton, S. M., Regier, D. A., Burke, W., Trinidad, S. B., Jarvik, Gail P., Veenstra, D. L., Patrick, D. L. (2019). The feelings about genomiC testing results (FACToR) questionnaire: development and preliminary validation. Journal of Genetic Counseling, 28(2), 477-490.
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CSER Phase 2 - Feelings about Genomic Testing Results (FACToR) – Parent
Year: 2018This post-return of child genetic test results survey for parents assesses the psychosocial impact of receiving genomic findings by measuring how much participants had specific feelings such as anx
Research Population: ParentsValidation(s):- Li, M., Bennette, C. S., Amendola, L. M., Ragan Hart, M., Heagerty, P., Comstock, B., Tarczy-Hornoch, P., Fullerton, S. M., Regier, D. A., Burke, W., Trinidad, S. B., Jarvik, Gail P., Veenstra, D. L., Patrick, D. L. (2019). The feelings about genomiC testing results (FACToR) questionnaire: development and preliminary validation. Journal of Genetic Counseling, 28(2), 477-490.
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Subjective Numeracy Scale (SNS)
Year: 2007Fagerlin and colleagues developed the Subjective Numeracy Scale (SNS) to distinguish low- and high quantitative ability individuals for use with patients that need to understand the risks of medica
Research Population: AdultsValidation(s):- Zikmund-Fisher, B. J., Smith, D. M., Ubel, P. A., Fagerlin, A. (2007). Validation of the Subjective Numeracy Scale: effects of low numeracy on comprehension of risk communications and utility elicitations. Med Decis Making, 27(5), 663–671.
- McNaughton, C. D., Cavanaugh, K. L., Kripalani, S., Rothman, R. L., Wallston, K. A. (2015). Validation of a Short, 3-Item Version of the Subjective Numeracy Scale. Med Decis Making, 35(8), 932–936.