Discover data collection instruments and related materials in the Research Tools database. Please see our FAQ to learn more and email us at [email protected] to contribute your published or unpublished research tools.
41 - 50 of 67 Research Tools
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Family Health History Interview Guide
Year: 2016Chen and colleagues developed this qualitative interview guide to explore the topic of family health history with Chinese Americans in the United States.
Research Population: AdultsContact: [email protected] -
Willingness to Participate in a Precision Medicine Cohort Study, Survey
Year: 2016This survey assesses support for and willingness to take part in a cohort study, aspects of participation, study oversight (including participant involvement in governance), and the return of infor
Research Population: AdultsContact: [email protected] -
Genomic Information and the Right Not to Know Questionnaire
Year: 2018Flatau and colleagues developed this survey to assess informational preferences among German patients, healthcare professionals, and members of the public in a genetic testing context.
Research Population: AdultsContact: [email protected] -
Awareness and Purpose of Genetic Counseling Survey
Year: 2013Maio and colleagues designed this survey to measure awareness and perceptions of the purpose of genetic counseling.
Research Population: AdultsContact: [email protected] -
Genetic Knowledge Test (Carrier Status, Autosomal Recessive Disorders, Expanded Carrier Screening)
Year: 2020Conjin and colleagues created this brief knowledge test to measure the effect of an educational video compared to an educational text.
Research Population: AdultsContact: [email protected] -
Attitudes Toward Prenatal Genetic Screening and Testing in Twin Pregnancies Survey
Year: 2018Reese and colleagues designed this survey to collect information on attitudes toward prenatal genetic screening and testing, including changes in attitude toward or uptake of testing related to the
Research Population: AdultsContact: [email protected] -
Interview Guide: Experiences of Sharing Direct-to-Consumer Genetic Testing Results
Year: 2018This interview guide seeks to understand the experiences of those who publicly shared their direct-to-consumer genetic testing results on the online platform openSNP.
Research Population: Adults -
The IntegratedEthics Staff Survey™ (IESS)
Year: 2013This survey, created by Pearlman and colleagues, measures the attitudes of staff towards ethical practices in multiple areas of a healthcare organizations.
Research Population: AdultsValidation(s):- Pearlman, R. A., Bottrell, M. M., Altemose, J., Foglia, M. B., & Fox, E. (2013). The IntegratedEthicsTM Staff Survey: A tool to evaluate and improve ethical practices in health care. AJOB Primary Research, 4(1), 7-19.
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Semi-structured Interview Guide: Experiences with Personal Genomic Testing
Year: 2020This semi-structured interview guide explores perceptions and use of personal genomic testing (PGT).
Research Population: Adults -
Survey, Support for Government Regulation of GMO Foods and Percived Risk of GMO Products
Year: 2016This survey assesses support for government regulation of GMO foods and percived risk of GMO products.
Research Population: Adults