Document Type
Survey
Genomic Information and the Right Not to Know Questionnaire
Year:
Year
2018
Flatau and colleagues developed this survey to assess informational preferences among German patients, healthcare professionals, and members of the public in a genetic testing context. The survey assesses participant characteristics, preferences about the return of genetic results, attitudes about physician disclosure, and willingness to share test results.
Research Population:
Research Population
Adults
Citation:
Citation Title
Flatau, L., Reitt, M., Duttge, G., Lenk, C., Zoll, B., Poser, W., Weber, A., Heilbronner, U., Rietschel, M., Strohmaier, J., Kesberg, R., Nagel, J., & Schulze, T. G. (2018). Genomic information and a person’s right not to know: A closer look at variations in hypothetical informational preferences in a German sample. PLoS ONE, 13(6), 1-15.
Citation Link
https://doi.org/10.1371/journal.pone.0198249
Contact:
Contact
Source
View online source